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FOIA Number: 2006-0810-F
FOIA
MARKER
This is not a textual record. This is used as an
administrative marker by the William J. Clinton
Presidential Library Staff.
Collection/Record Group:
Clinton Presidential Records
Subgroup/Office of Origin:
First Lady's Office
Series/Staff Member:
Melanne Verveer
Subseries:
Issue Binders
OA/ID Number:
18537
FolderlD:
Folder Title:
HRC Healthcare Book #8: Health Reform [2]
Stack:
Row:
Section:
Shelf:
S
60
1
6
Position:
�Withdrawal/Redaction Sheet
Clinton Library
DOCUMENT NO.
AND TYPE
SUBJECT/TITLE
DATE
RESTRICTION
001. schedule
Schedule for Hillary Rodham Clinton, Final [partial] (4 pages)
04/11/1994
P6/b(6)
002. schedule
Schedule for Hillary Rodham Clinton, Final-Revised [partial] (3
pages)
04/13/1994
P6/b(6)
003. schedule
Schedule for Hillary Rodham Clinton, Final [partial] (4 pages)
04/14/1994
P6/b(6), b(7)(E)
COLLECTION:
Clinton Presidential Records
First Lady's Office
Melanne Verveer (Issue Binders)
OA/Box Number:
18537
FOLDER TITLE:
HRC Healthcare Book #8: Health Reform [2]
2006-0810-F
kel80
RESTRICTION CODES
Presidential Records Act - [44 U.S.C. 2204(a)]
Freedom of Information Act - |S U.S.C. SS2(b)|
PI
P2
P3
P4
b(l) National security classified information [(bXl)of the FOIA]
b(2) Release would disclose internal personnel rules and practices of
an agency [(b)(2) of the FOIA]
b(3) Release would violate a Federal statute 1(b)(3) of the FOIA]
b(4) Release would disclose trade secrets or confidential or financial
information 1(b)(4) of the FOIA]
b(6) Release would constitute a clearly unwarranted invasion of
personal privacy 1(b)(6) of the FOIAj
b(7) Release would disclose information compiled for law enforcement
purposes 1(b)(7) of the FOIA]
b(8) Release would disclose information concerning the regulation of
financial institutions 1(b)(8) of the FOIA|
b(9) Release would disclose geological or geophysical information
concerning wells |(bX9) of the FOIA]
National Security Classified Information 1(a)(1) of the PRA1
Relating to the appointment to Federal office 1(a)(2) of the PRA]
Release would violate a Federal statute 1(a)(3) of the PRA]
Release would disclose trade secrets or confidential commercial or
financial information [(a)(4) of the PRA|
PS Release would disclose confidential advice between the President
and his advisors, or between such advisors [a)(S) of the PRA]
P6 Release would constitute a clearly unwarranted invasion of
personal privacy 1(a)(6) of the PRA|
C. Closed in accordance with restrictions contained in donor's deed
of gift.
PRM. Personal record misfile defined in accordance with 44 U.S.C.
2201(3).
RR. Document will be reviewed upon request.
�V0/14-Spec* fe Mot
�Withdrawal/Redaction Marker
Clinton Library
DOCUMENT NO.
AND TYPE
001. schedule
SUBJECT/TITLE
DATE
Schedule for Hillary Rodham Clinton, Final [partial] (4 pages)
04/11/1994
RESTRICTION
P6/b(6)
COLLECTION:
Clinton Presidential Records
First Lady's Office
Melanne Verveer (Issue Binders)
OA/Box Number:
18537
FOLDER TITLE:
HRC Healthcare Book #8: Health Reform [2]
2006-0810-F
kel80
RESTRICTION CODES
Presidential Records Act - (44 U.S.C. 2204(a)]
Freedom of Information Act - |S U.S.C. 552(b)]
PI
P2
P3
P4
b(l) National security classified information [(bXl) of the FOIA)
b(2) Release would disclose internal personnel rules and practices of
an agency [(b)(2) of the FOIAj
b(3) Release would violate a Federal statute |(bX3) of the FOIA]
b(4) Release would disclose trade secrets or confidential or financial
information 1(b)(4) of the FOIA|
b(6) Release would constitute a clearly unwarranted invasion of
personal privacy 1(b)(6) of the FOIA]
b(7) Release would disclose information compiled for law enforcement
purposes 1(b)(7) of the FOI A]
b(8) Release would disclose information concerning the regulation of
financial institutions 1(b)(8) of the FOIAJ
b(9) Release would disclose geological or geophysical information
concerning wells |(bX9) of the FOIA]
National Security Classified Information 1(a)(1) of the PRA|
Relating to the appointment to Federal office 1(a)(2) of the PRA]
Release would violate a Federal statute [(a)(3) of the PRA]
Release would disclose trade secrets or confidential commercial or
financial information 1(a)(4) of the PRA]
PS Release would disclose confidential advice between the President
and his advisors, or between such advisors |a)(5) of the PRA]
P6 Release would constitute a clearly unwarranted invasion of
personal privacy [(a)(6) of the PRA|
C Closed in accordance with restrictions contained in donor's deed
of gift.
PRM. Personal record misfile defined in accordance with 44 U.S.C.
2201(3).
RR. Document will be reviewed upon request.
�SCHEDULE FOR HILLARY RODHAM CLINTON
DATE: MONDAY, APRIL 11, 1994
FINAL*
Lead Advance:
Hyatt Regency
Mike King
Scheduling Desk:
Sara Grote
202-456-2922
202-456-2317
office
fax
PREV RON
The White House
8:30 am
9:30 am
DEPART The White House South P o r t i c o
EN ROUTE Hyatt Regency H o t e l
[Drive Time: 10 minutes]
T r a v e l i n g w/HRC:
- K e l l y Craighead
-Neel L a t t i m o r e o r Karen Finney
-Melanne Verveer
- H Photographer
W
9:40 am
ARRIVE
400 New Jersey Ave.
NOTE: Mike King w i l l meet HRC curbside.
Greeters: S t u a r t Roth, Chair of the Board
Shelley Fabares, Vice-Chair; P u b l i c P o l i c y
Judy Riggs, D i r e c t o r , Federal P o l i c y
9:40 am9:50 am
Committee
MEET & GREET W/Members o f t h e N a t i o n a l Board
�Section of Ticonderoga Room
Hyatt Regency
CLOSED PRESS
PARTICIPANTS: Approx. 30 expected t o a t t e n d . [See
b r i e f i n g f o r more i n f o . ]
FORMAT:
- Receiving line/meet & g r e e t
Event Contact: Judy Riggs,
9:55 am
10:00 am10:55 am
D i r . , Federal P o l i c y
PROCEED TO STAGE W/Program P a r t i c i p a n t s
ALZHEIMER'S ASSOCIATION PUBLIC POLICY FORUM
Ticonderoga Room
Holding Room
Phone: 202-942-1560
Fax:
202-393-7927
A t t i r e : Business
OPEN PRESS
On Stage with HRC:
-Stuart Roth, Chair o f t h e Board
-Shelley Fabares, Vice-Chair; P u b l i c P o l i c y Committee
-Hazel Chapman [mother], member of Alzheimer's A s s o c i a t i o n
-Angel Chapman [daughter], member o f Alzheimer's A s s o c i a t i o n
PARTICIPANTS: Approx. 500 expected t o a t t e n d
[See b r i e f i n g book f o r f u r t h e r i n f o ]
FORMAT:
- S t u a r t Roth, Chair o f t h e Board w i l l i n t r o HRC
- Shelley Fabares, Vice-Chair; P u b l i c P o l i c y
Committee t o present HRC w i t h t h e
Humanitarian
Award
- HRC .to d e l i v e r 15-20 min. remarks
- Q & A f o r 20 min
- Steve McConnell, Senior VP f o r P u b l i c P o l i c y &
Chair o f l o n g term care campaign, t o a c t as
moderator
- HRC t o work r o p e l i n e upon departure
Event Contact: Judy Riggs, D i r . Federal P o l i c y
202-393-7737 [o]
�SCHEDULE FOR HILLARY RODHAM CLINTON
MONDAY, APRIL 11, 1994
PAGE 3
11:00 am
DEPART The H y a t t H o t e l on C a p i t o l
EN ROUTE The White House
[ D r i v e Time: 10 minutes]
11:10 am
ARRIVE The White House South P o r t i c o
11:30 am12:30 pm
LUNCH
1:00 pm1:15 pm
PRIVATE MEETING W/Carolyn Lukensmeyer
HRC's O f f i c e
CLOSED PRESS
Contact:
1:30 pm1:45 pm
2:15 pm2:30 pm
2:30 pm4:45 pm
4:45 pm5:30 pm
Damon
456-6798
PRIVATE MEETING W/Dawn Baer
HRC's O f f i c e
CLOSED PRESS
Contact:
2:00 pm2:15 pm
Hill
Dawn Baer
456-2777
PRIVATE MEETING W/Maggie W i l l i a m s and P a t t i
HRC's O f f i c e
CLOSED PRESS
PRIVATE MEETING W/Maggie W i l l i a m s
HRC's O f f i c e
CLOSED PRESS
PHONE/OFFICE TIME
HRC s O f f i c e
HEALTH CARE MEETING
Solis
�SCHEDULE FOR HILLARY RODHAM CLINTON
MONDAY, APRIL 11, 1994
PAGE 4
Oval Office
CLOSED PRESS
Participants:
-The President
-HRC
-Harold Ickes
-Pat G r i f f i n
- I r a Magaziner
-George Stephanopoulos
S t a f f Contact: Harold Ickes
456-2459
»4<
6:15 pm
i
.
- j
(b)(6) ;4
;,
;
7:15 pm
DEPART The White House South P o r t i c o [w/The
President]
EN ROUTE The State Department
[Drive Time: 5 minutes]
7:20 pm
ARRIVE The State Department
Greeters: Secretary of State, Mrs. Christopher and Ambassador
Raiser
7:30 pm10:30 pm
THOMAS JEFFERSON DINNER [w/The P r e s i d e n t ]
State Department
A t t i r e : Black T i e
POOL PRESS DURING THE PRESIDENT'S ARRIVAL
AND REMARKS
�SCHEDULE FOR HILLARY RODHAM CLINTON
MONDAY, APRIL 11, 1994
PAGE 5
PARTICIPANTS: Approx. 2 00 expected t o a t t e n d
[See b r i e f i n g book f o r f u r t h e r i n f o ]
FORMAT:
PROCEED TO Benjamin F r a n k l i n Room f o r
o f f i c i a l photo
PROCEED TO John Quincy AdamS Room f o r
receiving line
THE PRESIDENT AND HRC ARE ANNOUNCED INTO
DINING ROOM
PROCEED TO Tables
THE PRESIDENT DELIVERS TOAST
Eagle l e c t e r n
DINNER I S SERVED
ENTERTAINMENT BEGINS
NOTE: F o l l o w i n g entertainment, t h e President
and HRC have o p t i o n t o mingle o r depart
S t a f f Contact: Ann Stock
456-7136
10:35 pm
DEPART The State Department
EN ROUTE The White House South P o r t i c o
[Drive Time: 5 minutes]
10:40 pm
ARRIVE The White House South P o r t i c o
—^—•• - y -j -r vi—r-r;— v; • ,—'— , '—yiW.V*—r 7 ? ^'^
1
'—^TZ
< '\ .\\
�SCHEDULE FOR HILLARY RODHAM CLINTON
MONDAY, APRIL 11, 1994
PAGE 6
RON
The White House
WEATHER FORECAST FOR WASHINGTON, DC:
-- M o s t l y c l o u d y w i t h a chance o f r a i n showers.
High 53 t o 58.
Low 46 t o 51
�THE WHITE HOUSE
O f f i c e o f t h e Press S e c r e t a r y
#
For Immediate Release
A p r i l 11, 1994
REMARKS BY THE FIRST LADY
AT ALZHEIMERS ASSOCIATION HUMANITARIAN AWARD PRESENTATION
MRS. CLINTON: Thank you so much f o r t h e i n v i t a t i o n
t o be here today and thank you, S t e w a r t , f o r your
i n t r o d u c t i o n and f o r a l l t h e work you do, and t h a n k s , t o o ,
S h e l l e y , f o r making t h i s p r e s e n t a t i o n .
I t i s p a r t i c u l a r l y a p t because as I t r a v e l around
t h e c o u n t r y w o r k i n g on b e h a l f o f h e a l t h care r e f o r m , I
c o l l e c t images, f a c e s , o f t h e people whom I meet and t h e
s t o r i e s t h a t I hear. So now, I w i l l have h i s map o f our
c o u n t r y w i t h hundreds o f f a c e s , most o f whom I w i l l never
meet p e r s o n a l l y , some o f whom I w i l l perhaps know about
t h r o u g h t h e work t h a t you do o r t h e s t o r i e s t h a t you t e l l ,
but a l l o f whom w i l l serve t o remind and spur me on as we go
f o r w a r d i n t h e n e x t months about what i t i s we a r e r e a l l y
t r y i n g t o do.
T h i s i s a debate, yes, about h e a l t h c a r e r e f o r m ,
but i t i s about people. I t i s about t h e people whose f a c e s
are on t h a t map and i t i s about t h e people whose l i v e s we
w i l l t o u c h and i t ' s about a l l o f lis i n t h i s room.
I was i n Syracuse l a s t week a t Syracuse U n i v e r s i t y
w i t h Senator Moynihan t o speak about h e a l t h c a r e and as I
f i n i s h e d a l l o f my events t h e r e , which i n c l u d e d a r a t h e r
remarkable d i s p l a y o f computer t e c h n o l o g y and how i t w i l l
l i n k d o c t o r s and h o s p i t a l s one w i t h t h e o t h e r so t h a t people
w i l l be a b l e t o g e t s e r v i c e s a t d i s t a n c e s from t h e major
m e d i c a l c e n t e r s , and a f t e r I had spoken t h e r e i n t h e c h a p e l
t o a v e r y e n t h u s i a s t i c crowd o f young p e o p l e , I went o u t s i d e
where t h e r e were about 2,000 o r 3,000 more who c o u l d n ' t g e t
i n t o t h e c h a p e l and I s a i d a few words t o them and t h e n , as
i s my custom, I walked down t o shake t h e i r hands as I moved
t o w a r d my c a r t o leave. Many o f them were v e r y e x c i t e d about
the event and were s a y i n g a l l k i n d s o f s u p p o r t i v e and v e r y
personally rewarding t h i n g s .
I g o t t o one young woman who grabbed my hand and
looked a t me and s a i d , my f a t h e r has A l z h e i m e r s . Please h e l p
MORE
�my f a t h e r . Her words stopped a l l o f t h e young people r i g h t
around h e r and t h e y l i s t e n e d as she t o l d me what has been t h e
s t o r y o f h e r f a t h e r and h e r f a m i l y s i n c e he was diagnosed
w i t h Alzheimers and how l i t t l e s u p p o r t and l i t t l e helpi t h e y
r e a l l y had.
T h i s i s n o t a new s t o r y t o you who a r e members o f
t h i s A s s o c i a t i o n and s u p p o r t i t s work.
I t was a new s t o r y
f o r many o f t h e o t h e r c o l l e g e s t u d e n t s who s t o o d around t h i s
young g i r l .
I t s t r u c k me t h a t she was d i s p l a y i n g t h e k i n d o f
courage t h a t you d i s p l a y i n your work on b e h a l f o f Alzheimers
and a l s o your d a i l y c a r i n g f o r t h e people you l o v e , b u t she
was a l s o an advocate. She was e d u c a t i n g those around h e r as
she spoke w i t h me.
So t h e work t h a t you do i s t a k i n g many forms and
t o u c h i n g people who may never j o i n t h e A s s o c i a t i o n , whom you
may never encounter, b u t who, on a d a i l y b a s i s , a r e pushing
your agenda and our j o i n t agenda f o r h e a l t h care r e f o r m
forward.
I want t o thank a l l o f you and t h e A s s o c i a t i o n f o r
your i n v a l u a b l e , courageous work.
I want t o thank you f o r
your s u p p o r t f o r r e s e a r c h i n t o e f f e c t i v e t r e a t m e n t ,
p r e v e n t i o n , and yes, some day, a cure f o r A l z h e i m e r s . I want
t o t h a n k you f o r t h e s u p p o r t t h a t you g i v e t o c a r e g i v e r s , f o r
your l e a d e r s h i p i n h e l p i n g t o develop i n n o v a t i v e approaches
t o l o n g - t e r m care, and f o r t h e s t r o n g and l o u d v o i c e s o f t h e
p u r p l e people l e a d i n g t h e f i g h t o r comprehensive h e a l t h care
reform.
Tomorrow Hazel and Angle Chapman who a r e here on
the stage w i t h us w i l l be t e s t i f y i n g b e f o r e t h e Senate
S p e c i a l Committee on Aging. They w i l l be t e l l i n g t h e i r s t o r y
and i t ' s a s t o r y t h a t w i l l be f a m i l i a r t o many o f you b u t
needs t o be t o l d over and over and over a g a i n . They w i l l be
t a l k i n g about Hazel's husband and Angle's f a t h e r , Tom, who a t
age 53 has l a t e stage A l z h e i m e r ' s Disease. Hazel and Angie
are t h e p r i m a r y c a r e g i v e r s . Because o f Tom's young age, he
does n o t q u a l i f y f o r any Older Americans A c t s e r v i c e s i n h i s
community. The o n l y h e l p t h e y g e t i s from t h e l o c a l
A l z h e i m e r ' s A s s o c i a t i o n Chapter, which has a s m a l l program
funded by t h e S t a t e o f V i r g i n i a t h a t p r o v i d e s a d u l t day care
two days a week.
Tom's disease i s p r o g r e s s i n g so r a p i d l y t h a t Hazel
f e a r s he w i l l have t o go i n t o a n u r s i n g home i n a year o r
l e s s u n l e s s she i s a b l e t o g e t more h e l p f o r him a t home o r
i n t h e community. She has no idea how she would pay f o r t h e
MORE
�n u r s i n g home c a r e . The f a m i l y ' s s o l e support i s s o c i a l
s e c u r i t y d i s a b i l i t y and $8 5 a month from Tom's government
p e n s i o n . He i s i n e l i g i b l e f o r h i s f u l l pension u n t i l t h e age
of 59. She uses t h a t t o cover a p o r t i o n o f t h e $122 a month
h e a l t h i n s u r a n c e b i l l , b u t he doesn't q u a l i f y f o r Medicare.
He's been on d i s a b i l i t y f o r two y e a r s . Hazel j u s t s o l d h e r
house because she c a n ' t make h e r mortgage payments. She
f e a r s s h e ' l l have t o move i n t o p u b l i c housing. I f she had
some h e l p , she c o u l d go back t o work.
T h i s i s j u s t one s t o r y b u t i t stands f o r m i l l i o n s
of s t o r i e s . I t ' s a s t o r y t h a t we hope w i l l i l l u s t r a t e t o t h e
c o u n t r y t h a t people l i k e Hazel, Angie and Tom have been
h a r d w o r k i n g , t a x p a y i n g American c i t i z e n s ; t h e y ' v e made t h e i r
c o n t r i b u t i o n s t o our c o u n t r y . They have been a f f l i c t e d by a
d i s e a s e t h a t we s t i l l a r e o n l y l e a r n i n g about b u t u n d e r s t a n d
t h e d e v a s t a t i o n i t can cause.
I know t h a t A l z h e i m e r ' s i s t h e most expensive and
l e a s e i n s u r e d i l l n e s s most Americans w i l l l i k e l y f a c e . I t i s
a d i s e a s e t h a t has a l r e a d y h i t f o u r m i l l i o n Americans l e a v i n g
over 19 m i l l i o n r e l a t i v e s and 67 m i l l i o n f r i e n d s and he
extended f a m i l i e s o f t h o s e 4 m i l l i o n t o c a r r y t h e burden o f
p r o v i d i n g t h e care t h a t t h e A l z h e i m e r p a t i e n t so d e s p e r a t e l y
needs.
I t i s p r e d i c t e d i n t h e c u r r e n t t r e n d we see t h a t
over 14 m i l l i o n Americans w i l l have A l z h e i m e r ' s Disease by
t h e m i d d l e o f t h e c e n t u r y and t h e c o s t , which a l r e a d y exceeds
$30,000 t o $40,000 t o $50,000 a y e a r w i l l be a s t r o n o m i c a l . I
a l s o know t h a t A l z h e i m e r ' s i s n o t an a g i n g i s s u e ; i t i s a
f a m i l y i s s u e because when i t s t r i k e s one person i n a f a m i l y ,
i t s t r i k e s t h e e n t i r e f a m i l y . What we have t o make a l l o f
America aware o f i s t h e r e , b u t f o r t h e grace o f God, go many
of us and t h a t t h e r e a r e ways we can h e l p p r o v i d e s u p p o r t and
t r e a t m e n t w h i l e we c o n t i n u e t o l o o k f o r t h e answers i n
r e s e a r c h t h a t w i l l enable us t o p r e v e n t o r a m e l i o r a t e ,
m a i n t a i n and c o n t r o l t h e e f f e c t s o f t h e d i s e a s e .
T h i s i s a l s o an i s s u e t h a t r a i s e s as s t a r k l y as any
what we have done i n o u r h e a l t h c a r e system t h a t i s o f t e n so
pennywise and pound f o o l i s h , t h a t does n o t r e c o g n i z e r e a l
c o s t s , human and economic, o f c a r i n g f o r people w i t h l o n g t e r m care needs. I t i s so u n f a i r and r e a l l y n o n s e n s i c a l t o
draw l i n e s t h a t say, yes, we have a d i f f e r e n c e between
m e d i c a l care and l o n g - t e r m c a r e , and we w i l l h e l p your f a t h e r
who has a h e a r t a t t a c k , b u t n o t your mother who has
MORE
•
�Alzheimer's.
•
For t h e f i r s t t i m e we have a p r o p o s a l i n t h e
P r e s i d e n t ' s p r o p o s a l t h a t understands long-term caxe and
medical care a r e p a r t o f a continuum o f care t h a t needs t o be
a v a i l a b l e f o r people.
Today, as you know, many people a r e
f o r c e d i n t o n u r s i n g homes when a l i t t l e b i t o f h e l p would
enable them t o s t a y a t home. We need t o begin by g i v i n g
a l t e r n a t i v e s t h a t w i l l enable t h o s e who have Alzheimeir's t o
l i v e w i t h d i g n i t y and n o t i n a n u r s i n g as t h e o n l y
a l t e r n a t i v e where t h e y can g e t t h e care they need.
We need t o have a l l over t h e c o u n t r y t h e t y p e s o f
programs t h a t I have v i s i t e d i n some S t a t e s t h a t a r e
o p e r a t i n g as p i l o t s and models, l i v i n g hand-to-mouth because
t h e money may n o t be t h e r e n e x t year, b u t w h i l e t h e y a r e
p r o v i d i n g care now a r e d o i n g so i n c o s t e f f e c t i v e , humane
ways t o Alzheimer p a t i e n t s .
We a l s o need t o r e c o g n i z e t h a t
i t i s n o t j u s t t h e Alzheimer p a t i e n t who needs c a r e , i t i s
t h e c a r e g i v e r who a l s o needs c a r e . We need t o r e c o g n i z e t h a t
you, people l i k e Hazel and Angle, need r e s p i t e c a r e , need
t i m e o f f . I f you a r e w i l l i n g t o s h o u l d e r t h e r e s p o n s i b i l i t y
t h a t we as a n a t i o n should want you t o i n c a r i n g f o r l o v e d
ones, we need t o h e l p you s h o u l d e r t h a t r e s p o n s i b i l i t y , so we
need more o p p o r t u n i t i e s f o r you t o n o t o n l y have t h e h e l p you
need t o do i t b u t t o have t h e t i m e o f f t h a t w i l l recharge
your b a t t e r i e s so t h a t you can go back t i m e and t i m e a g a i n .
Too m^ny Americans today can o n l y g e t h e l p by
spending t h e i r way i n t o p o v e r t y and t h e n o n l y i f you p u t your
l o v e d one i n t o an i n s t i t u t i o n which i s u s u a l l y t h e most
expensive t h i n g t o do and t h e l a s t t h i n g t h a t many want t o
do. I t j u s t doesn't make sense t h a t i s your o n l y o p t i o n . On
t h i s i s s u e , sound f a m i l y p o l i c y i s a l s o sound f i s c a l p o l i c y ,
and t o those who say — and t h e r e a r e many who say t h i s —
t h a t we cannot a f f o r d l o n g - t e r m care i n our c o u n t r y , I say,
we n o t o n l y can a f f o r d i t , we have t o a f f o r d i t . I t i s t h e
most e f f e c t i v e way t o care f o r people and t o keep f a m i l i e s
t o g e t h e r . I f we a r e g o i n g t o say we a r e a p r o - f a m i l y
c o u n t r y , l e t ' s s t a r t a c t i n g l i k e i t i n our o f f i c i a l
government p o l i c i e s .
There's a l o t o f r h e t o r i c p u t t h e r e about what you
s h o u l d do as f a m i l y members and how you should t a k e care o f
your l o v e d ones, b u t you know, r h e t o r i c w i t h o u t h e l p i s n o t
o n l y h o l l o w , i t ' s c r u e l . What we have done, n o t j u s t w i t h
r e s p e c t t p l o n g - t e r m c a r e , b u t i n so many o t h e r areas o f
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�h e a l t h care p o l i c y i s t o h o l d o u t empty promises, t o make
people f e e l t h e y are a l l alone i n t h i s e f f o r t .
Stewart
r e f e r r e d t o t h e f a c t t h a t t h e r e are now n e a r l y 40 m i l l i o n
Americans w i t h o u t h e a l t h insurance;' t h e r e are 25 m i l l i o n more
who are so u n d e r i h s u r e d t h a t t h e idea t h a t t h e y a c t u a l l y have
h e a l t h i n s u r a n c e i s c l o s e t o l a u g h a b l e . They have i t i f you
c o n s i d e r a $5,000 d e d u c t i b l e o r a $50,000 l i f e t i m e l i m i t , o r
an e l i m i n a t i o n o f p r e e x i s t i n g c o n d i t i o n s t p be h e a l t h
i n s u r a n c e . I t h i n k i t ' s a c r u e l hoax. What we have t o do i s
r e c o g n i z e once and f o r a l l t h a t everyone i n t h i s c o u n t r y , no
m a t t e r where you l i v e , no m a t t e r where you work, no m a t t e r
who you a r e , should be e n t i t l e d t p h e a l t h care and s h o u l d
t h a t h e a l t h care i n c l u d e l o n g - t e r m care? Yes, i f i t ' s g o i n g
t o l i v e up t o t h e promise t h a t i t proposes.
Under t h e P r e s i d e n t ' s p r o p o s a l , t h e r e w i l l be more
s u p p o r t f o r t h e one l i k e Lynn Noyes who i s w i t h us t o d a y ,
runs i n N o r t h e r n V i r g i n i a . I p i c k t h a t because i t i s an
example i n t h i s area so perhaps t h e press and o t h e r s can go
see what we're t a l k i n g about when we t a l k about t h e s e k i n d s
o f a l t e r n a t i v e s . Lynn I met a t a meeting a t t h e White House
a few weeks ago when she asked me a q u e s t i o n about, would you
guess, l o n g - t e r m care and s i n c e t h e n I ' v e l e a r n e d t h a t she
runs an a d u l t day care c e n t e r t h a t i s a model f o r what we are
t r y i n g t o do.
For those o f you who do n o t know about i t , i t i s
c a l l e d t h e Family R e s p i t e Center.
I t started w i t h the help
of t h e l o c a l Alzheimer's A s s o c i a t i o n Chapter and i t g i v e s
A l z h e i m e r ' s c a r e g i v e r s r e s p i t e , i t g i v e s them a chance t o go
t o work d u r i n g t h e day, i t g i v e s them a chance t o t a k e some
hours o f f d u r i n g t h e day. They a l s o do a l o t o f g r e a t
i n t e r g e n e r a t i o n a l a c t i v i t i e s w i t h t h e c h i l d day care c e n t e r
t h e r e as w e l l .
Even w i t h w o n d e r f u l programs l i k e t h i s , we know ,
t h a t Alzheimer's and t h e fiear o f i t d e v a s t a t e s f a m i l i e s , so
we have t o make p r e v e n t i n g A l z h e i m e r ' s a h i g h p r i o r i t y .
So
t h a t i s why I b e l i e v e r e s e a r c h , p a r t i c u l a r l y i n t o diseases
l i k e A l z h e i m e r ' s , must be a t o p p r i o r i t y o f any h e a l t h care
r e f o r m e f f o r t . Only a few years ago, we t h o u g h t t h a t
s o l u t i o n s t o p r e v e n t i n g or d e l a y i n g Alzheimer's were f a r away
b u t now r e c e n t d i s c o v e r i e s i n d i c a t e t h a t t h e p o s s i b i l i t y o f
d e a l i n g w i t h and perhaps p r e v e n t i n g and i n some way
c o n t r o l l i n g t h e disease more e f f e c t i v e l y are w i t h i n our
r e a c h . We can see our i n v e s t m e n t i n t o Alzheimer's r e s e a r c h
i s b e g i n n i n g t o show r e s u l t s . Recent d i s c o v e r i e s show t h a t
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we may be a b l e t o d e l a y t h e onset o f t h e d i s e a s e , a
b r e a k t h r o u g h t h a t c o u l d reduce the. numbers o f f a m i l i e s
people w i t h Alzheimer's by h a l f .
and
We a l s o know t h a t even t h a t i s n o t enough —
r e s p i t e , r e s e a r c h ; we have t o go f u r t h e r . We need t o i n v e s t
more money i n t o Alzheimer's r e s e a r c h as t h e P r e s i d e n t ' s
h e a l t h r e f o r m p r o p o s a l does so t h a t we can c o n t i n u e and
enhance t h e p r o g r e s s we have made and beat t h i s disease once
and f o r a l l .
As you f i g h t i n t h e coming weeks and months f o r
l o n g - t e r m care and more money f o r r e s e a r c h , I hope you w i l l
a l s o f i g h t f o r t h e broader cause o f h e a l t h care r e f o r m
because i t i s a l l p a r t o f t h i s continuum, t h i s e n t i r e system
we need t o be changed. There's been a l o t o f c o n f u s i o n and
some d i s t o r t i o n around t h e P r e s i d e n t ' s p r o p o s a l and I want t o
j u s t b r i e f l y t e l l you how our r e f o r m w i l l work so t h a t you
can advocate on i t s b e h a l f and e x p l a i n i t t o your f r i e n d s and
neighbors.
There a r e s e v e r a l major p r i n c i p l e s t h a t we want t o
see i n h e a l t h care r e f o r m . F i r s t , we want guaranteed p r i v a t e
i n s u r a n c e f o r every American, n o t government i n s u r a n c e ,
c o n t r a r y t o what some o f t h e opponents o f h e a l t h care r e f o r m
say; we want guaranteed p r i v a t e i n s u r a n c e . Remember t h a t t h e
opponents o f h e a l t h care r e f o r m today a r e t h e descendants by
d i r e c t l i n e a g e o f t h e people who opposed s o c i a l s e c u r i t y when
they s a i d i t wa§ s o c i a l i s m , t h e people who opposed Medicare
when t h e y s a i d i t was government medicine, and every one o f
you who i s e l i g i b l e f o r Medicare knows how i t works, you p i c k
your d o c t o r , you go where you want and t h e b i l l i s p a i d f o r
you t o t h e e x t e n t o f Medicare coverage.
I t i s t h e same
argument we've had f o r t h e l a s t 60 y e a r s . So remember when
you hear t h e s e code words, t h e y are b r o u g h t t o you by t h e
same people who d i d n ' t want you t o have s o c i a l s e c u r i t y o r
Medicare e i t h e r .
Guaranteed p r i v a t e i n s u r a n c e has t o i n c l u d e
comprehensive b e n e f i t s t h a t do i n c l u d e d i a g n o s t i c s e r v i c e s ,
mental h e a l t h b e n e f i t s and p r e s c r i p t i o n drugs. These are
b e n e f i t s c r i t i c a l t o every American, b u t p a r t i c u l a r l y t o
people w i t h A l z h e i m e r ' s . We a l s o want t o guarantee your
c h o i c e o f d o c t o r and h e a l t h p l a n , a c h o i c e t h a t i s n o t
guaranteed f o r you today. One o f t h e r e a l s l i c k arguments a g a i n s t h e a l t h c a r e r e f o r m i s t h a t somehow t h e P r e s i d e n t ' s
approach w i l l t a k e away your c h o i c e o f d o c t o r , h o s p i t a l o r
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�h e a l t h p l a n . What i s happening today? Those o f you who a r e
on t h e f r o n t l i n e s know t h a t fewer than h a l f o f Americans
w i t h h e a l t h insurance today have a choice o f d o c t o r , h o s p i t a l
or h e a l t h p l a n because what i s happening i n an e f f o r t t o
c o n t r o l c o s t s i s you're b e i n g t o l d , here's t h e l i s t o f
d o c t o r s you can use under your i n s u r a n c e p o l i c y , here i s t h e
l i s t o f h o s p i t a l s you an go t o . Choice i s b e i n g t a k e n away
from you r i g h t now. I t i s \the P r e s i d e n t ' s p r o p o s a l t h a t
wants t o guarantee- c h o i c e o f d o c t o r and h e a l t h p l a n t o
Americans.
T h i r d l y , we want t o o u t l a w i n s u r a n c e abuse, and
t h a t means e l i m i n a t i n g p r e e x i s t i n g c o n d i t i o n s as a b a r t o
h e a l t h care insurance f o r Americans.
I t a l s o means, and t h i s i s v e r y i m p o r t a n t t o many
A l z h e i m e r p a t i e n t s , e l i m i n a t i n g l i f e t i m e l i m i t s . Why should
you, when you f i n a l l y need h e a l t h care read t h e f i n e p r i n t i n
your i n s u r a n c e p o l i c y and d i s c o v e r you have a l i f e t i m e l i m i t
on b e n e f i t s when you need them t h e most. I f you pay f o r
i n s u r a n c e , you should be a b l e t o g e t h e a l t h care when you
need i t and we w i l l guarantee t h a t you w i l l have t h a t by
eliminating lifetime limits.
We a l s o b e l i e v e we should n o t p e r m i t h e a l t h
i n s u r e r s t o d i s c r i m i n a t e a g a i n s t o l d e r people merely on t h e
b a s i s o f t h e i r age. A l l o f us should be i n t h i s t o g e t h e r .
We ought t o go back t o an o l d - f a s h i o n e d idea which i s
i n s u r a n c e o u g h t ^ t o i n s u r e t h e community — o l d e r , younger,
middle-aged, s i c k , w e l l ; we a l l ought t o be i n a b i g p o o l
t o g e t h e r and i n t h a t g r e a t b i g p u r c h a s i n g p o o l , we should a l l
pay what w i l l amount t o lower r a t e s t o i n s u r e everybody
i n s t e a d o f t h e k i n d o f c h e r r y p i c k i n g t h a t goes on now t h a t
e l i m i n a t e s coverage f o r many people and makes i t u n a f f o r d a b l e
f o r many o t h e r s .
F o u r t h l y , we want t o d e l i v e r h e a l t h care b e n e f i t s
a t work which i s what most Americans a r e f a m i l i a r w i t h and
what works f o r them now. We do n o t want a government h e a l t h
c a r e system; we want t o b u i l d on t h e system we have, a
p u b l i c - p r i v a t e system. We have p u b l i c h o s p i t a l s , we have
p u b l i c h e a l t h , b u t most o f us r e l y on t h e p r i v a t e h e a l t h care
system. We want t o c o n t i n u e by b u i l d i n g on t h a t and making
i t p o s s i b l e f o r . y o u t o g e t your h e a l t h care b e n e f i t s a t your
p l a c e o f work. The d i f f e r e n c e w i l l be you make t h e d e c i s i o n
o f your h e a l t h p l a n , n o t our employer. Small businesses w i l l
be g i v e n d i s c o u n t s , low wage workers w i l l be g i v e n h e l p .
We
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w i l l be a b l e t o a f f o r d t h i s because i f you add t h e people who
pay n o t h i n g now t o t h e e n t i r e p o p u l a t i o n t h a t i s i n s u r e d ,
t h a t i s b i l l i o n s o f more d o l l a r s coming i n t o t h e system. How
do people who a r e n o t f u l l y i n s u r e d now o r i n s u r e d a t a l l g e t
t h e i r h e a l t h care? They g e t i t a t t h e l a t e s t p o s s i b l e moment
by g o i n g u s u a l l y t o t h e emergency room where we do t h a n k f u l l y
l i v e i n a c o u n t r y where t h e y do f i n a l l y g e t some h e a l t h c a r e ,
o f t e n t h e most expensive h e a l t h c a r e t h a t i s a v a i l a b l e t o
them. When t h e y cannot pay t h e i r b i l l , t h e r e s t o f us have
our premiums i n c r e a s e d so we can t a k e c a r e o f them.
Everybody s h o u l d be r e s p o n s i b l e , everybody s h o u l d pay
something.
L e t ' s have a l e v e l p l a y i n g f i e l d t h a t every
s i n g l e American makes a c o n t r i b u t i o n a c c o r d i n g t o h i s a b i l i t y
t o pay so t h a t every one ,of us i s i n s u r e d .
F i n a l l y , we want t o p r e s e r v e and improve Medicare
by adding p r e s c r i p t i o n drugs and l o n g - t e r m c a r e . Many o f you
w i l l , as you t a l k w i t h members o f Congress, be p r e s e n t e d w i t h
a l t e r n a t i v e p l a n s . L e t me suggest t h e q u e s t i o n s and answers
you s h o u l d be l o o k i n g f o r .
Does t h e b i l l o r t h e approach p r o v i d e l o n g - t e r m
c a r e and l i s t e n c a r e f u l l y t o t h e answer. There a r e those who
say, oh, yes, my p l a n does, b u t t h e i r i d e a o f an i n s u r a n c e
p l a n i s you pass r e f o r m i n t h e Congress and you s e t up some
government body t h a t t h e n decides what t h e b e n e f i t s a r e . I
wouldn't buy an insurance p o l i c y l i k e t h a t where you pay your
money on t h e f r o n t end and you're t o l d l a t e r what i t c o v e r s .
L i s t e n c a r e f u l l y . Make sure i t i s i n t h e l e g i s l a t i o n . The
P r e s i d e n t ' s r e f o r m does t h a t .
Does t h e l o n g - t e r m care o p t i o n emphasize home and
community-based care? We don't need more n u r s i n g homes; we
need more home and community-based c a r e o p t i o n s .
As i f t h e l o n g - t e r m c a r e o p t i o n s w i l l be a v a i l a b l e
t o persons o f a l l ages, incomes and l e v e l s o f d i s a b i l i t y .
We
do n o t want anymore means t e s t i n g o r anymore c a t e g o r i c a l
programs where you have t o r u n t h r o u g h hoops i n o r d e r t o
q u a l i f y . We want t h i s t o be a v a i l a b l e t o a l l Americans
r e g a r d l e s s o f t h e i r income, t h e i r age, t h e i r l e v e l o f
disability.
The f a c t t h a t Tom i s 53 years o l d and i n t h e
l a s t stages o f Alzheimer's s h o u l d n o t bar him from g e t t i n g
h e l p f o r h i m s e l f and h i s f a m i l y . L e t ' s s t a r t t a k i n g care o f
everybody w i t h a l o n g - t e r m care program.
F i n a l l y , ask does i t p r o v i d e consumer c h o i c e
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�because t h a t ' s what t h e P r e s i d e n t ' s p l a n does. A l l o f these
f e a t u r e s t h a t your a s s o c i a t i o n helped us as we were p r e p a r i n g
the l e g i s l a t i o n are included i n t h e President's proposal.
So what I hope i s t h a t you w i l l go from t h i s ,
a s s o c i a t i o n meeting and devote some o f our p r e c i o u s t i m e ,
which f o r many o f you as c a r e g i v e r s , i s so hard t o f i n d b u t
make those phone c a l l s , w r i t e those l e t t e r s , a t t e n d those
meetings, c a l l those r a d i o t a l k show hosts when t h e y s t a r t
g o i n g on about government h e a l t h c a r e , and t e l l them, t h a t ' s
n o t what you're f o r and t h a t ' s n o t what t h e P r e s i d e n t ' s f o r ,
and e x p l a i n i n your most p o l i t e v o i c e , what i t i s we a r e
t r y i n g t o do f o r Americans. Maybe even ask a q u e s t i o n l i k e ,
a r e you w e l l - i n s u r e d a t t h a t l i t t l e o l d r a d i o s t a t i o n you
work f o r ? I f t h e y decided t h e y d i d n ' t l i k e t h e sound o f your
v o i c e tomorrow, would you have insurance?
L e t ' s g e t people
t o s t a r t c u t t i n g t h r o u g h t h e r h e t o r i c and a l l t h e smoke t o
t h i n k about we a r e t r y i n g t o achieve because I a p p r e c i a t e d
what Stewart s a i d so much.
T h i s i s n o t j u s t about h e a l t h care r e f o r m and even
l o o k i n g back from t h e f u t u r e about what we've accomplished i n
h e a l t h c a r e , t h i s i s about what k i n d o f c o u n t r y we a r e and
whether we r e a l l y care about each o t h e r . We have s p l i n t e r e d
so b a d l y i n t h e l a s t couple o f decades. For some o f us our
c o u n t r y i s i n many ways n o t r e c o g n i z a b l e t o t h e one we grew
up i n , t h e .kind o f p l a c e where people looked o u t f o r each
o t h e r and r e g a r d l e s s o f your income, race o r e t h n i c i t y , you
were p a r t o f an^extended community t h a t was t h e r e f o r you.
We've g o t t e n away from t h a t and here i s more t h a n enough
reasons f o r us t o c a t a l o g b u t we need t o go on from where we
a r e . We need t o r e b u i l d t h e American community. We need t o
s t a r t r e a c h i n g o u t t o h e l p each o t h e r . You do t h a t every
s i n g l e day. You a r e examples o f what we want our c o u n t r y t o
care about a g a i n .
So I thank you f o r what you do and I hope you w i l l
h e l p us by s t r e t c h i n g even a l i t t l e b i t f u r t h e r t o make i t
p o s s i b l e f o r us t o have h e a l t h care r e f o r m t h a t r e a l l y does
r e p r e s e n t t h e b e s t o f America.
Thank you a l l v e r y much.
Q Mrs. C l i n t o n , I'm H i l d a P r i g e n ( p h o n e t i c ) from
t h e M i n n e a p o l i s - S t . Paul area and I'm a f o u n d i n g member o f
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t h i s o r g a n i z a t i o n so I ' v e been around a long t i m e .
My husband A l f r e d s u f f e r e d from Alzheimer's Disease
f o r 15 years and my f a m i l y went t h r o u g h what people on t h e
stage t h e r e a r e g o i n g t h r o u g h r i g h t now. I t i s w o n d e r f u l f o r
me t o see — t h i s i s t h e f i r s t r a y o f hope f o r o u r f a m i l i e s
t h a t l o n g - t e r m care i s p a r t o f t h e c u r r e n t h e a l t h care
d i s c u s s i o n . I t h i n k i t ' s so i m p o r t a n t . F a m i l i e s want t o
c o n t i n u e t o t a k e care o f t h e i r own b u t t h e y need h e l p . We
need h e l p t h e f i n a n c i a l burden and t h e c a r e g i v i n g burden.
We're w i l l i n g t o do i t , we need h e l p and i t ' s good t o hear
this.
Thank you so much.
MRS. CLINTON:
Thank you.
Q I'm Faye P l i x from Orange County, C a l i f o r n i a .
I'm an e l d e r l a w a t t o r n e y here on b e h a l f o f my f a m i l y who
cannot speak f o r themselves.
We a r e g r e a t l y a p p r e c i a t i v e t h e P r e s i d e n t ' s p l a n
i n c l u d e s home-based and community-based care b u t I have a
problem and t h a t i s t h a t may o f my f a m i l i e s a r e beyond t h a t
k i n d o f care. They a r e about t o f a c e o r a r e f a c i n g t h e
ravages o f n u r s i n g home care and I'm wondering i f you can
g i v e me any. hope t o b r i n g back t o my f a m i l i e s .
Secon41y, my c o l l e a g u e s and I tomorrow a r e g o i n g t o
be meeting w i t h t h e Orange County c o n g r e s s i o n a l d e l e g a t i o n .
I'm wondering i f you can g i v e us any h e l p i n how t o make your
message more p a l a t a b l e across v e r y p a r t i s a n l i n e s ?
MRS. CLINTON:
Those a r e two v e r y
important
questions.
We a r e t r y i n g a l s o i n h e a l t h care r e f o r m under t h e
P r e s i d e n t ' s p l a n , t o i n c r e a s e t h e asset l e v e l so t h a t so many
f a m i l i e s do n o t have t o d e p l e t e t h e i r a s s e t s b e f o r e t h e y a r e
e l i g i b l e f o r n u r s i n g homes. We t h i n k t h e r e s h o u l d be a much
h i g h e r l i m i t t h a n t h e r e c u r r e n t l y i s . We a l s o want t o h e l p
n u r s i n g homes g e t more i n c e n t i v e s t o move i n t o subacute care
so t h a t t h e y a r e n o t a l s o l o c k e d i n t o a t y p i c a l m e d i c a l model
n u r s i n g home t h a t may o r may n o t be a p p r o p r i a t e f o r c e r t a i n
stages o f c e r t a i n diseases, i n c l u d i n g A l z h e i m e r ' s .
So we've
g o t some i n c e n t i v e s f o r changing t h a t as w e l l .
MORE
�11
We a l s o b e l i e v e , and t h i s may sound a l i t t l e b i t
u n r e l a t e d b u t I ' v e had a number o f c o n v e r s a t i o n s w i t h n u r s i n g
home a d m i n i s t r a t o r s . One o f t h e problems, t o be honest w i t h
a l l o f you, you know t h i s , i n n u r s i n g homes i s t h e h i g h r a t e
of turnover o f s t a f f .
You have about a 60 p e r c e n t t u r n o v e r .
That i s v e r y d i f f i c u l t t o g e t s u s t a i n e d care.
There a r e two t h i n g s we t h i n k w i l l h e l p . One i s t o
have more n u r s i n g home beds a s s o c i a t e d i n t h e same s e t t i n g
w i t h d i f f e r e n t l e v e l s o f care so t h a t people w i l l be moving
from a d u l t day care t o maybe congregate l i v i n g t o n u r s i n g
homes so t h a t t h e k i n d o f i n c e n t i v e s f o r home and community
based care w i l l a c t u a l l y h e l p n u r s i n g home care become
better.
Secondly, many n u r s i n g homes do n o t p r o v i d e
b e n e f i t s f o r t h e i r employees, which i s one o f t h e reasons you
have such a h i g h t u r n o v e r . Once everyone i s r e q u i r e d t o have
h e a l t h i n s u r a n c e , we b e l i e v e , and based on those n u r s i n g
homes t h a t c u r r e n t l y p r o v i d e h e a l t h insurance t h a t have a
much lower r a t e o f t u r n o v e r , t h e q u a l i t y o f t h e s t a f f and t h e
h e l p w i l l be enhanced so t h a t t h e day-to-day c a r e g i v i n g i n
t h e n u r s i n g homes w i l l be b e t t e r . So those a r e some o f t h e
t h i n g s we a r e t r y i n g t o do.
Orange County, as you know, i s c e r t a i n l y one o f t h e
more Republican and p a r t i s a n areas i n t h e c o u n t r y and t h e
cdngressional delegation there i s q u i t e p a r t i s a n . I t h i n k
j u s t t e l l your ^ t o r i e s and d o n ' t l e t them come back a t you
w i t h t h e r h e t o r i c . There a r e l o t s o f ways t h a t we can agree
t o d i s a g r e e about p a r t i c u l a r s , b u t we cannot p e r m i t t h i s
debate t o be c a r r i e d o u t w i t h k i n d o f p o l i t i c a l p a r t i s a n
r h e t o r i c . We have t o g e t beyond t h a t .
So i f t h e y s t a r t i n
about t h e government t h i s o r t h e government t h a t , I t h i n k you
are o b v i o u s l y w e l l - t r a i n e d and a r t i c u l a t e and can h e l p w i t h
k i n d o f g e t t i n g t h e c o n v e r s a t i o n . b a c k on t r a c k .
I r e a l l y b e l i e v e t h a t t h i s i s an i s s u e t h a t should
be beyond p a r t i s a n s h i p . A l z h e i m e r ' s doesn't p o i n t f i n g e r s a t
Republicans o r Democrats. That's n o t t h e way i t works and we
ought t o be as s t r o n g as we can i n s a y i n g t h i s i s an i s s u e
t h a t i s f o r Americans and t h e r e a r e ways we can do t h i s t h a t
w i l l a c t u a l l y save us money over t h e l o n g r u n . So I hope you
are s u c c e s s f u l .
Q My name i s W.L. Edwards.
Tennessee Chapter.
MORE
I'm w i t h t h e Southeast
�12
Mrs. C l i n t o n , we a l l a p p r e c i a t e your e f f o r t s t o
i n c l u d e community-based care i n t h e P r e s i d e n t ' s p r o p o s a l .
wonder i f you c o u l d come on t o what e x t e n t i n c l u d i n g
community and home-based care i n t h e f i n a l b i l l w i l l be
negotiable?
I
. MRS. CLINTON: We c e r t a i n l y hope t h a t i t i s i n t h e
f i n a l b i l l b u t we have t o r e c o g n i z e t h a t t h e Congress needs
t o hear l o u d and c l e a r from Orange County a l l t h e way t o
Maine and everywhere i n between t h a t t h i s i s a r e a l need and
i t s h o u l d be met. We a r e c e r t a i n l y hoping t h a t i t can be i n
p r e t t y much t h e form t h a t i t i s i n t h e P r e s i d e n t ' s b i l l .
Unless people r e a l l y g e t o u t and work t h e i r members o f
Congress, I can't promise t h a t .
I t ' s one o f those i s s u e s
t h a t has t o have a l o t o f g r a s s r o o t s a c t i v i t y behind i t i n
o r d e r t h a t i t does n o t g e t syphoned o f f . That's where I hope
a l l o f you w i l l h e l p us.
Q H e l l o , Mrs. C l i n t o n . My name i s Chase and I'm
from C h a r l o t t e , N o r t h C a r o l i n a . I'm almost 10 years o l d .
My g r a n d f a t h e r has Alzheimer's Disease and we go up
t o my grandmother's house t o see sometimes on he weekends.
He l i k e s t o walk o f f and we r e t r i e v e him and b r i n g him back.
She'd l i k e t o have l o n g - t e r m c a r e . How can she g e t l o n g - t e r m
care w i t h o u t being broke? How does your h e a l t h care p l a n
h e l p my grandmother?
MRS. ,CLINTON: That's a c t u a l l y t h e q u e s t i o n t h a t
we've t r i e d t o answer f o r your grandmother and f o r your whole
f a m i l y because r i g h t now, as I was d e s c r i b i n g t h e s i t u a t i o n
Hazel and her daughter f a c e , t h e woman who i s s i t t i n g here
w i t h me, i t i s n o t a f f o r d a b l e and i t has always s t r u c k me as
r a t h e r odd t h a t we wouldn't h e l p your grandmother o r Hazel
t a k e care o f t h e i r husbands a t home by g i v i n g them a l i t t l e
b i t o f h e l p o r h e l p s u p p o r t and a d u l t day care o p t i o n i n t h e
neighborhood o r t h e community, b u t we would pay thousands f o r
d o l l a r s f o r n u r s i n g home c a r e .
So what we a r e g o i n g t o do f o r your grandmother i s
p r o v i d e some f i n a n c i a l h e l p and some o p t i o n s t h a t w i l l be
a v a i l a b l e t o her so she can keep your g r a n d f a t h e r a t home b u t
have some h e l p d o i n g , i t , and i t w i l l be a f f o r d a b l e t o h e r .
Q I have a f o l d e r here.
I l o s t my w i f e i n 1990 t o
Alzheimer's and I've been w o r k i n g w i t h them s i n c e . I'm from,
t h e Northwest L o u i s i a n a Chapter.
MORE
�13
I n the f o l d e r , I have some p i c t u r e s , some
handwritten l e t t e r s from some of our c o n s t i t u e n t s , and t h e
i n s i g h t of two of my grandchildren on what Alzheimer's meant
t o them. They are so b e a u t i f u l l y w r i t t e n and I would l i k e t o
leave t h i s w i t h you, H i l a r y .
suggest —
MRS. CLINTON: Thank you, s i r . Could I also
have you kept copies of that?
Q
I have indeed.
MRS. CLINTON:
them a copy as well?
Q
—
and Senators and perhaps leave
I am very f l a t t e r e d t h a t you and I have the same
thoughts.
* * * * *
�April 10,1994
SPEECH TO THE ALZHEIMER'S ASSOCIATION
DATE:
Monday, April 11
TIME:
9:45 am
LOCATION: Hyatt Regency
FROM:
Liz Bowyer, Christine Heenan
L
PURPOSE
To speak at the Alzheimer's Association's annual Public Forum and receive the
Association's Humanitarian Award.
IL
BACKGROUND
Hie Alzheimer's Association
The Alzheimer's Association, considered the leading organization in America for
people with Alzheimer's disease, is the only national voluntary health agency
dedicated solely to supporting victims of Alzheimer's and their families, and to
promoting research to find the causes and effective treatments for the disease. The
Association works through a 50-state network of 220 local chapters, 2000 family
support groups, and 35,000 volunteers. The Association was founded in 1982, and is
headquartered in Chicago.
The Association's main activities include providing Alzheimer's families with direct
support financially and in caregiving, educating the public about the Alzheimer's
disease, providing training in Alzheimer's care for health and long term care
providers, and providing funds for new Alzheimer's research and for partnerships
with government foundations and the private sector to test innovative approaches to
long term care.
The Alzheimer's Association and Health Care Reform
The Alzheimer's Association has been one of the most supportive and active groups
for the President's plan, and has been very aggressive at the grassroots level. The
Association's local advocates go to town hall meetings, forums and health care
visibility events dressed in purple, and are known as "the purple people". The
Association is the lead organization in the Long Term Care Campaign (its vice
president, Steve McConnell is chairman of the LTCQ and a member of the Health
Reform Project
The Association's two key issues in the health reform debate are long term care and
medical research The Association feels that almost all of its concerns are addressed
�in the President's plan, and understands that its specific concerns can only be
addressed within the broader context of health reform that achieves universal
coverage and cost containment
The Alzheimer's Association is particularly committed to investment in medical
research, because unlike almost any other disease, there are no known preventive
steps anyone can take to prevent Alzheimer's or reduce the risk of getting the
disease. The Association has committed over $30 million to private funds to
stimulate biomedical and health services research, and says that the pace of
Alzheimer's research has accelerated so much in the last 18 months that scientists are
optimistic about major breakthroughs in the next decade with continued funding.
The Alzheimer's Association supports the Harkin-Hatfield research bill (see q & a
section for further information.)
[Note: In February, the Association released a survey conducted by Gallup that
shows that nine out of ten Americans believe longtermcare should be a part of
health care reform. According to the survey, 30 percent of Americans — 57 million
people — have a close relative who has needed long term care in the past five years.]
Alzheimer's and the Health Security Act
The President's health care plan will help combat Alzheimer's disease by funding
new research into the causes of and treatments for Alzheimer's.
The Act increases funding to research into prevention and treatment for Alzheimer's
disease, new drug therapies to treat Alzheimer's, and respite services to give those
caring for a family member an occasional and much-deserved break.
The President's approach will substantially increase funding to conduct and support
research aimed at preventing diseases that strike older Americans. $2.9 billion
dollars will be dedicated to new prevention research, including research targeting:
-
Alzheimer's disease
osteoporosis
cancers, including breast cancer
heart disease and stroke.
The National Institutes of Health will give certain areas of research special priority,
including elderly health, substance abuse, and chronic health conditions (for example
diabetes, arthritis, and heart disease). These efforts will go a long way to uncovering
the root causes of many of the diseases that afflict older Americans, and discovering
new treatments and cures.
The Health Security Act invests an additional $285 billion in "health services
research" — evaluating the effectiveness and appropriateness of different procedures.
�and the quality of different kinds of care.
The new home and community-based long-term care plan will cover adult day care —
an important service for those suffering from Alzheimer's, and respite services, which
will allow caregivers time to run errands and get a break from constant caregiving.
The Alzheimer's Disease
According to the Alzheimer's Association, the Alzheimer's disease is the most
expensive and least insured illness most American families are likely to face. A
person can live with Alzheimer's anywhere from 3 to 20 years, sometimes longer. In
every case she or he will eventually need full-time care.
Alzheimer's Statistics [from the Alzheimer's Association]:
4 million Americans have Alzheimer's disease today.
14 million Americans will have Alzheimer's by the year 2050, unless medical
science finds a way to prevent the disease or halt its progress.
One in 10 persons over age 65 and nearly half of those over 85 have
Alzheimer's.
19 million Americans have a family member with Alzheimer's. 67 million
have friends with the disease.
For every Alzheimer's patient; there are three of four family caregivers who
suffer emotionally and financially in caring for the patient
The national cost of Alzheimer's disease is approaching $100 billion a year.
Families pay nearly all of the cost of care.
Recent Developments in Alzheimer's Research:
The drug Cognex, or tacrine, is the first drug approved by the FDA for Alzheimer's
disease. Introduced last fall, this drug has proven to be beneficial in preserving
cognitive functions of some Alzheimer's patients. Only about one-third of the people
who tried Cognex in a Warner-Lambert Co. study, however, could tolerate high
doses of the drug without side effects. Of that one-third, seven out of 10 realized
some benefit from taking the drug.
*A recent study published by the Journal of the American Medical Association found
that those who were more highly educated or who worked in managerial or
professional jobs were half as likely to develop dementia as those who didn't attend
high school or worked in less intellectually demanding jobs. The study is based on a
theory that those who use their brains more develop more synapses; Alzheimer's
slowly destroys synapses, but educated people may have more synapses to lose and
therefore debilitate under Alzheimer's at a slower rate.
�Hie Alzheimer Association Public Forum "Families in Action"
The Alzheimer's Association's annual Public Forum brings Alzheimer's advocates
from around the country to Washington to draw attention to the need for long term
care and funding for Alzheimer's research The theme of this year's forum is
"Families in Action", and for the first time, children are playing a prominent role in
forum activities. About 40 children who have had a family experience with
Alzheimer's will partidpate.
One of the children, 13 year-old Angela Chapman from Virginia, will testify with her
mother before the Senate Aging Committee on Tuesday on what ifs like to provide
care for her father who has Alzheimer's (see prepared testimony attached). Angela
and Hazel Chapman were on the Today show on Saturday. The Chapmans will be
on stage with you.
Audience
The audience will be approximately 500 of the Alzheimer's Association's most active
advocates from chapters all around the country. Almost every member of the
audience has had family members who have, or have already died from, Alzheimer's,
and they understand from personal experience that our current health care system
doesn't work. Most of the advocates in the audience are active with the Long Term
Care Campaign.
i
On Tuesday, the forum partidpants are going to the Hill to meet with their Members
of Congress.
The Alzheimer's Association's Humanitarian Award
This award is presented to individuals outside the Assodation who have
demonstrated outstanding national leadership toward improving the lives of
Alzheimer's patients and families. Senator Rockefeller was the award redpient last
year, and other redpients include Senators George Mitchell, Mark Hatfield and Tom
Harkin, and Representative Edward Roybal. The award was first presented in 1984.
Shelley Fabares (Fab-RAY), who stars in the sitcom "Coach", will present you with
the Humanitarian Award. Her mother had Alzheimer's, and she is very active in the
Assodation.
ffl.
PARTICIPANTS
HRC
On stage with HRC
Stuart Roth, Chairman, Alzheimer's Assodation Board of Directors
�Shelley Fabares, star of "Coach"; member of the Alzheimer's Association National
Board and vice-chair of the Public Policy Committee
Angela Chapman, caregiver
Hazel Chapman, caregiver
Steve McConnell, Vice-President Alzheimer's Association; Chairman, Long Term
Care Campaign (Q & A moderator)
Audience of approximately 500
IV.
SEQUENCE OF EVENTS
HRC arrives Hyatt Regency
HRC proceeds to meet & greet with Board Members (10 min.)
HRC proceeds to stage, escorted by Stuart Roth, Shelley Fabares and Angela
and Hazel Chapman
Stuart Roth intros HRC and Shelley Fabares
Shelley Fabares gives brief remarks and presents Humanitarian Award to HRC
HRC gives remarks (approx. 20 min.)
Q & A (moderated by Steve McConnell — approx. 20 min.)
HRC departs stage and works ropeline
HRC departs Hyatt Regency
V.
PRESS
Open press.
VL
REMARKS
Provided by Jason Solomon.
�LONG-TERM CARE
Expands Home and Community-Based Care
The Health Security Act will establish a new home and community based care
program, enabling more than 2 million older Americans and 1 million
Americans with disabilities who need long term care to live at home,
independently, in their communities, or with family caregivers — which most
prefer. Services will be tailored to meet individual needs and could include
such services as in-home care, personal assistance, respite for family caregivers,
adult day services, rehabilitation, assistive devices, and services in assisted
living facilities.
Protects Nuising Home Residents
The Health Security Act will improve the quality of life for nursing homes
residents. States will have the option to let nursing home residents keep more
of their personal assets and still qualify for Medicaid. The personal needs
allowance for all Medicaid residents would be increased to a minimum of $50
a month.
Makes Private Long-Term Care Insurance More Affordable
The Act will improve the quality of private long-term care insurance by
establishing tough national standards that prevent insurance companies from
denying people coverage or choosing only the best risks. New tax incentives,
similar to those available for health insurance, will help make private long-term
care insurance more affordable.
Encourages People with Disabilities to Work
Individuals with disabilities who work will be eligible to obtain tax credits for
SO percent of the costs of personal expenses needed to work, up to $15,000
maximum per year. This will provide more opportunity for people with
disabilities to be further integrated into the workforce.
Supports Family Caregivers
The President's approach will help family members care for relatives with
disabilities with the long-awaited support they deserve, giving families a break
when they need it most.
�MEDICAL RESEARCH AND EDUCATION
Fights Alzheimer's Disease
The Act increases funding to research into prevention and treatment for
Alzheimer's disease, new drug therapies to treat Alzheimer's, and respite
services to give those caring for a family member an occasional and muchdeserved break.
Expands Research for Disease Prevention
The President's approach will substantially increase funding to conduct and
support research aimed at preventing diseases that strike older Americans. $2.9
billion dollars will be dedicated to new prevention research , including research
targeting:
- Alzheimer's disease
- osteoporosis
- cancers, including breast cancer
- heart disease and stroke.
Emphasizes Research for Elderiy Health
The National Institutes of Health will give certain areas of research special
priority, including elderly health, substance abuse, and chronic health
conditions (for example diabetes, arthritis, and heart disease). These efforts
will go a long way to uncovering the root causes of many of the diseases that
afflict older Americans, and discovering new treatments and cures.
Researches Effective Treatments
The Health Security Act invests an additional $2.85 billion in "health services
research" — evaluating the effectiveness and appropriateness of different
procedures, and the quality of different kinds of care.
Makes Sure Older Americans Get the Medicine They Need
Under the President's plan, coverage of prescription drugs is added to Medicare.
As part of providing this new benefit, pharmacists and physicians will receive
training about the appropriateness of certain drugs and their effects, and
pharmacists will answer patient questions regarding the appropriate use of the
drug, possible side effects, and potential interactions with other drugs.
�PRESCRIPTION DRUG COVERAGE
"Any doctor who deals with the elderly will tell you that there are many elderly people who
don't get medicine, who get sicker and sicker and eventually go to the doctor and wind up
spending more money and draining more money from the health care system than they would
if they had regular treatment in the way that only adequate medicine can provide."
— President Clinton, speech to a Joint Session of Congress, September 22, 1993
•
Older Americans are hurt by high drag prices and no prescription drug
coverage.
Between 1980 and 1992, while the general inflation rate increased by 22 percent,
drug prices increased 128 percent. For 3 out of 4 older Americans, prescription
drugs are the highest out of pocket health care cost. Nearly two thirds of
Americans over the age of 65 have no prescription drug coverage, and over eight
million older Americans are forced to choose between buying food and medicine.
•
Prescription drag coverage willreduceoverall costs in the long-ran.
Many older Americans and others are hospitalized today because their lack of
prescription drug coverage means that they can't afford to get the medication they
need. In fact, one study says that problems related to medication lie at the root of
25 percent of all hospitalizations of older patients ~ and costs more than $21
billion a year.
•
Medicarerecipientswill be guaranteed prescription drag coverage for the
fiist time.
Medicare beneficiaries will have 80 percent coverage for their medications after
they reach a $250 deductible. A $1,000 annual cap will be placed on out-ofpocket prescription drug costs, with costs above this amount fully covered. Patients
will receive counseling from their pharmacist on what medications are most
appropriate.
�MEDICARE
Preserves and Strengthens Medicare
Under the Health Security Act, older Americans will see little difference in where,
how or from whom they receive their health care. And although every health
reform proposal before the Congress calls for significant savings from Medicare,
the President's plan is the only one that reinvests the savings in two new benefits
for older Americans: prescription drugs and a new federal/state program outside of
Medicare providing home- and community- based long-term care.
Provides Prescription Drag Coverage
Medicare beneficiaries will have 80 percent coverage for their medications after
they reach a $250 deductible. A $1,000 annual cap will be placed on out-ofpocket prescription drug costs, with costs above this amount fully covered. Patients
will receive counseling from their pharmacist on what medications are most
appropriate.
Increases Choice for Medicare Beneficiaries
For Medicare beneficiaries reform will mean more choices among health plans, and
the ability to choose a plan which may offer lower copays and deductibles than
traditional Medicare coverage offers today.
Protects Seniors Against Fraud and Overcharges
The Health Security Act calls for new penalties to pursue and prosecute those who
order unnecessary tests and procedures to defraud Medicare and senior citizens. In
addition, the Health Security Act controlsrisingcosts in both the private sector and
Medicare.
Loweis Medigap Premiums
For those who currently buy a Medigap policy to cover prescription drugs and
overcharges, the Health Security Act will mean significantly lower costs. The plan
stops doctors or hospitals from charging more than Medicare covers. And it
prohibits insurance companies from using pre-existing conditions to exclude people
from Medigap coverage.
�Questions About the Health Security Act
Q: Will my Medicare coverage change?
You will receive Medicare benefits exactly as you do today, with the addition of
prescription drug coverage. And you will have more choices. Different kinds of health
plans — which frequently have lower deductibles and copayments - will be made more
available on an optional basis.
Q: If I am covered by Medicare will I still be able to see my own doctor
under the new plan?
Yes. You will always be able to choose your doctor, because Medicare will work just like
it does today. After turning 65, they will have the option of enrolling in Medicare, or
staying in the plan they are in.
Q: Wont there berationingof care after reform?
Absolutely not. That's a scare tactic used by opponents of reform. The President's
approach will give you the security of knowing that you can get the care you need when
you need it.
Q: What about long-term care? Will Ireceivehelp with caring for myself or
my loved one at home?
The President's approach recognizes that older Americans and those with disabilities prefer
home and community based care — the kind of care not covered today. The plan will
provide greater coverage for long-term care for people with disabilities, including older
Americans, through a new home and community-based care program.
Although nursing homes will continue to play an important role in long-term care, the
President's approach recognizes that to best serve older persons and people with
disabilities, long-term care must offer a wide range of social services. For example, the
plan will help families care for relatives with disabilities by helping pay for respite
services that give families a break when they need it most. The Health Security Act marks
an important first step, moving us toward a more comprehensive system that has a wide
range of options for older Americans and people with disabilities.
Q: I know many people who need long-term care. How will the long-term
care benefit be distributed?
The new long-term care benefit will be available to persons with severe disabilities of all
�ages, regardless of income. Each state will design a program to best meet the needs its
citizens. Eligible older Americans may receive home care, personal assistance or other
services. The plan also supports family members who often serve as the only source of
care for their loved ones.
Q: Will the plan help with the high cost of prescription drugs?
Yes. The Health Security Act will help cover prescription drugs — older Americans'
highest out-of-pocket expense. For less than $10 a month. Medicare beneficiaries will get
80 percent coverage of their medications after they reach a $250 deductible. All out-ofpocket costs above $1,000 will be fully covered. And patients will receive regular
counseling from their pharmacist on what prescription drugs are most appropriate.
Q: Willreducingthe projectedrateof the growth of costs in Medicare and
Medicaid affect my benefits?
No. In fact your benefits will be expanded. The reduction in the growth of the cost of
Medicare and Medicaid will happen at the same time as costs are controlled in the private
sector. These changes to the program will reduce the rate of growth of inflation by one
third and enable us to control the price of health care. But it won't involve any reduction
in services or cuts in benefits. Fraud and inefficiency have crept into the system, and we
will make a determined effort to get rid of this waste, using the money to expand benefits.
Q: I currently have supplemental insurance. Will I stillreceivebenefits in
the Health Security Act?
Yes. If you have supplemental insurance through Medicaid, you will receive the same
Medicaid benefits under the Health Security Act that you do now. If you get supplemental
insurance through a Medigap policy, you can still get that policy. But for those who
currently must buy a Medigap policy to cover prescription drugs and overcharges, the
Health Security plan will mean significantly lower costs.
Q: How are transportation services covered in the Health Security Act?
The President's plan provides coverage for transportation services through two new
initiatives. First, we create a long-term care program aimed at keeping people at home.
States will design and implement the program to meet the needs of senior citizens and
disabled Americans in their states, which for many seniors will mean assistance with
transportation.
In addition, a special section of the plan provides new money for "enabling services".
These aren't direct health care services such as doctor's visits; they are extra services that
�help enable people to get access to the doctors and hospitals that provide care.. The plan
specifically lists transportation as one of those services, and provides $200 million in the
first year alone for carrying out these services.
Q: Do you support the Harkin-Hatfield research bill?
The President and I both feel strongly that we should redouble our efforts to combat
disease and find new cures, which is why new funding for research is a major component
of our bill. Senator(s) Harkin (and Hatfield) agree with us on this, and while their bill
goes farther to set up a new trust fund for research, we feel our bill has a similar
commitment to continuing and enhancing cutting-edge medical research.
�Testimony of Mrs. Hazel Chapman
Norfolk, V i r g i n i a
Mr. Chairman and members of the Committee.
I am g r a t e f u l t o
you f o r i n v i t i n g me here today t o t e l l my story.
Let
me begin by saying t h a t
I never thought I ' d be here
t a l k i n g about Alzheimer's disease and long term care.
thought these were things t h a t a f f e c t e d o l d people.
they can a f f e c t people of any age.
Angela i s only 13.
i
I'm only 45.
I always
But I now know
My daughter
This disease has made a huge impact on our
lives.
My husband Tom i s 53 years o l d and he s u f f e r s from Alzheimer's
disease.
He was diagnosed about two years ago and the disease has
progressed t o the point that he i s incapable of doing anything on
h i s own. He can't dress himself or go t o the bathroom by himself.
He shadows me a l l day long because he i s a f r a i d t o be alone.
When
he eats he o f t e n does not know t h a t food i s supposed t o go i n h i s
mouth.
Tom's disease, as bad as i t i s , i s only part of our problem.
Because he i s not o l d enough my husband doesn't q u a l i f y f o r most of
the services t h a t are a v a i l a b l e i n our community, which have an age
l i m i t of 60. He i s not e l i g i b l e f o r home and community services
�funded
by the Older Americans Act.
Also, he can't get Social
Security retirement or r e g u l a r pension b e n e f i t s .
e l i g i b l e f o r Medicare.
And, he i s n ' t
He's i n a "no man's land."
Our f a m i l y i s l i v i n g on a small amount of money from Social
Security d i s a b i l i t y and $85 a month from a government retirement
fund.
With t h a t we have t o buy h e a l t h insurance, which costs $122
a month, pay f o r housing, food and anything else we need.
I can no
longer meet the mortgage payments on our house, so we put i t up f o r
sale.
We w i l l be moving next month.
Thank God f o r the Alzheimer's Association chapter.
out by o f f e r i n g us two days a week of day care.
They help
This allows me t o
get some break from t a k i n g care of Tom around the clock and l e t s me
attend t o other needs.
Unfortunately, i t i s not enough.
I'm
having a l o t of d i f f i c u l t y j u g g l i n g caregiving f o r Tom and r a i s i n g
my daughter Angela.
I need t o get a job, but I can't p o s s i b l y be
away from home r i g h t now.
I have t o stay home t o care f o r my
husband and help my daughter grow up.
I have heard about President Clinton's h e a l t h care plan and
e s p e c i a l l y about the long term care program he has proposed.
f a r as I can t e l l ,
i t ' s e x a c t l y what we need.
As
I f I had help a t
home, f o r example, i t would allow me time t o be a b e t t e r mother and
I could go back t o work.
I am now a t the p o i n t t h a t I am forced t o
place Tom i n a nursing home.
I'm t o l d t h a t i t w i l l cost $2900 a
month, money we simply do not have.
I have s t a r t e d the process of
�applying f o r Medicaid, which I hope w i l l pay the costs.
But, i t
seems t h a t i t would be so much cheaper and better f o r everyone i f
there were some services a t home t o help our family and other
f a m i l i e s l i k e us.
I know there i s a l o t of concern here i n Washington about the
costs o f President's Clinton's plan.
I understand t h a t .
But how
can we put a p r i c e t a g on the value of a family and then say we
can't a f f o r d i t .
Our f a m i l y i s being t o r n apart by Alzheimer's
disease and there i s no help f o r us.
Our l i t t l e h e a l t h insurance
p o l i c y pays f o r t r e a t i n g my husband's high blood pressure.
i t ' s of no use f o r h i s Alzheimer's disease.
But
I t doesn't seem r i g h t
t h a t we t u r n our backs on people because t h e i r ailment doesn't f a l l
i n the r i g h t category.
The devastation of Alzheimer's knows no boundaries.
As our
elected leaders you can't cure my s u f f e r i n g over the loss of my
husband. You can't b r i n g my daughter Angela's daddy back t o her so
she can be a normal teenager.
You can't ease the mental anguish my
husband goes through as h i s mind gradually erodes.
help ease the f i n a n c i a l s t r a i n on our family.
But, you can
You can help provide
some of the support and services our family needs t o keep going.
And, you can help keep our f a m i l y together and my husband out o f an
institution.
I don't envy your task as you struggle w i t h the best ways of
f i x i n g our h e a l t h care system.
I hope you w i l l have the s t r e n g t h
�and courage t o stand up t o the special i n t e r e s t s that say i t can't
and shouldn't be changed.
And, I hope you can keep a l l of us i n
mind when you are t o l d we can't a f f o r d t o include long term care.
I don't see any way t h a t we can a f f o r d not t o include i t .
May God be w i t h you.
And, thank you f o r l i s t e n i n g t o my
story.
Now I would beg your f u r t h e r indulgence w h i l e my daughter
Angela makes a b r i e f statement.
�Statement of Angela Chapman
I used t o be "daddy's g i r l " when I was l i t t l e .
wanted, my daddy d i d f o r me.
me.
Anything I
Before h i s disease he used t o help
Now i t ' s the other way around.
Mentally, my dad i s younger than me. I have t o help feed him,
put on h i s shoes and dress him.
When my mom needs t o r u n an
errand, I have t o stay and watch my dad. He gets i n t o t r o u b l e i f
there i s n ' t someone wathching him a t a l l times.
I miss the way i t used t o be. When he was working I was able
t o go skating and bowling.
Now I can't do those things because we
don't have the money and we can't leave him alone i n the house.
I'm embarrassed t o b r i n g f r i e n d s t o my house because they
wouldn't understand.
acts
strange.
Alzheimer's.
I t ' s not t h a t my dad says bad things, he j u s t
I have one good f r i e n d
whose grandmother has
She understands what I'm going through.
my f r i e n d s wouldn't
But most of
understand.
I go t o my f r i e n d ' s house a f t e r school t o get away from i t
all.
I'm a f r a i d of being too close t o my Dad because when he dies
i t w i l l be too hard.
�People say t h a t I'm growing up too f a s t .
a "midget a d u l t . "
can't
I'm becoming k i n d of
I can't have fun l i k e I used t o .
Sometimes I
even go t o school because I get so stressed out about
everything happening t o my dad and my family.
I suppose i t would be easier i f he were i n a nursing home. At
l e a s t then I could s t a r t t o have a more normal l i f e .
But I r e a l l y
don't want him t o go.
I'm scared about my f u t u r e .
have enough money.
some day.
My mom i s scared because we don't
I'm scared too t h a t I might get t h i s disease
Both of my uncles, my Dad's brothers, have Alzheimer's.
I f there was one t h i n g I could ask you f o r i t would be t o
change things so my dad could get some help.
services now because he's too young.
He can't get any
I f someone could come t o our
home t o help care f o r my dad, i t would make things easier f o r me
and f o r my mom.
But what I r e a l l y want i s t o have my Daddy back.
�ALZHEIMER'S
'ASSOCIATION
Someone to Stand by You
HEARING OF THE SENATE SPECIAL COMMITTEE ON AGING
"HEALTH CARE REFORM: THE LONG-TERM CARE FACTOR"
TUESDAY, APRIL 12 9:30 a.m. - Noon
SELECTED WITNESS PROFILES
Hazel and Angela Chapman
Hampton Roads, YA
Hazel's husband Tom, age 53, has late stage Alzheimer's disease. Hazel and Angela are the
primary caregivers. His young age means he does not qualify for any Older Americans Act
services in his community. The only help they get is through the local Alzheimer's
Association chapter, which has a small program funded by the state that provides adult day
care two days a week. Tom's disease is progressing so rapidly that Hazel fears he will have
to go into a nursing home in a year, unless she is able to get more help with him at home or
in the community. She has no idea how she will pay for the nursing home care.
The family's sole support is Social Security disability and $85 per month from Tom's
government pension (he isn't eligible for fiill pension until age 59), which she uses to cover a
portion of the $122 per month health insurance bill. Tom doesn't qualify for the Medicare
until he's been on disability for two years. Hazel just sold her house because she can't make
her mortgage payments. She fears she will have to move into public housing. If she had
some help, she could go back to work. She is aware of the President's health care plan,
especially the long term care provisions, and is strongly supportive of it.
Angela is a beautiful and endearing young girl whose life has been affected by her father's
disease. She has to help with caregiving for her father. And, she won't bring friends to her
house because she doesn't want to explain why her father is the way he is.
Hazel and Angela will be testifying before a hearing of the U.S. Senate Special Committee
on Aging regarding long term care and their experience with Alzheimer's disease on Tuesday
morning, April 12, as part of the Alzheimer's Association public policy forum, "Families In
Action." The hearing will take place starting at 9:30 a.m. in Room 216 of the Senate Hart
Office Building.
CONTACT: Niles Frantz, (312) 335-5776 or Marybeth Sanders, (312) 335-5764
April 10-13, call (202) 942-1553
ALZHEIMER'S DISEASE AND RELATED DISORDERS ASSOC. INC.
919 North Michigan Avenue, Suite 1000 . Chicaj-o, Illinois 60611-1676 • Phone: (312) 335-8700 • Fax: (312) 335-1 110 • TDD: (312) 33v8882
�04/08/94
18:47
©202 393 2109
aLZHEIMER'S ASSN
12002 004
Summary of Schedule for 1994
A l z h e i m e r ' s Aseociation Public Policy Forum
Saturday, April 9
Installation of "Faces of Alzheimer's" display
Rotunda, Cannon House Qffica Building
Sunday, April 10
2:00 p.m. Opening session
Keynote address from Monsignor Charles J. Fahey, Fordham University,
"Families in Action: A Powerful Force for Changp."
Training sessions on advocacy skills
Monday, April 11
8:15 a.m. Health Care Reform and Long Term Care
Ed Howard, Alliance for Health Raform, and Stephen
McConnell, Alzheimer's Association Senior Vice President of Public
Poliuy, and Chair of ihe Long Term Care Campaign
^"10:00 a.m. Presentation of the Humanitarian Award to the First Lady
11:00 a.m. Small focus groups to discuss health care reform (preparation for
Congressional visits)
12:15 p.m. Luncheon address by U.S. Senator Tom Harkin "The 1 % Solution:
Finding Research Resources"
Afternoon Advocacy sessions on Alzheimer's research
7;30 p.m. National Candlelight Vigil honoring people with Alzheimer's Disease
Reflecting Pool, U.S. Capitol
Tuesday, April 12
All Day
Individual visits with members of Congress
9:30 a.m. Congressional Hearing an Long Term Care (Angela and Hazel Chapman
testify for the Alzheimer's Association)
U.S. Senate Special Committee on Aging
5:00 p.m.
Congressional Reception,
Cannon House Office Building, Cannon Caucus Room
Wednesday, April 13
8:30 a.m. Closing session
Breakfast address by U.S. Senator Russ Feingold, entitled "Keeping the
Alzheimer Message Alive"
Special Youth Advocates Activities
Sunday morning Tour of Washington
Monday 11 a.m. Insider's Tour of the Capitol
Monday afternoon Special advocacy training; preparation of the "Family Ties" display
featuring art work, poems and stories by children and
grandchildren of Alzheimer's viotims.
�04/08/94
16:47
© 2 0 2 393 2109
aLZHEIMER'S ASSN
8)003/004
ALZHEIMER'S ASSOCIATION
(People Mrs. Clinton will meet at 9:45 am Monday, April 11)
MEMBERS OF THE BOARD OF DIRECTORS - for individual photos
(almost all of these people have a family experience with Alzheimer's)
Stuart Roth
Paul McCarty
(Chainnan of Board) New York, NY
(Chair Public-Policy Committee) Medmen, MA
Shelley Fabares (Vice-Chair Public Policy Committee - Christine in ABC-TV series "Coach")
Sherman Oats, CA
Betsy Brawlcy
(Chair 1994 Public Tolicy Fomm) Sausalito, CA
Orien Reid
(Vice-Chair 1994 Public Policy Forum) Laverock, PA
Kitty Men, Baytowa, TX
Michael Bartns, Binninghaiu. MI
Roberta "Bobby" Blatt, Los Angeles, CA
Leonard Berg (Chair Medical Scientific Advisory Board) St. Louis, MO
Mrs. George F. Berlinger, New York, NY
Kea Bravo, Cleveland, OH
Stephen Breuer, Los Aageles, CA
Joseph .Copeland., Gatlinburg, TN
Dennis Dowdell, Jr. (Corporate VP, Henry Ford Health System) Detroit, MI
Nancy Emerson Lombardo, Concord, MA
Lisa Gwyther, Durham. NC
James Hull, Salinas, CA
Bill Keane, Langbome, PA
James Mammoser, Dunwoody, GA
Marty Maitin, Raleigh, NC
William McLennan, Try on, NC
Lin Noyes (Director, Family Respite Center) Falls Church, VA
Hilda Pridgeon (Founding Member of the Association) Bloomington, M f
N
Ruth Rabyne, Chicago, IL
Gary Randall. Omaha, NE
Joan Rothrauff, Virgima Beach, VA
James Spiro, Chicago, IL
Diane Young, River Ridge, LA
Peter Whitehousc, Cleveland, OH
Edward Truschke (President) Chicago, IL
Connie Rivera (Chief Operadng Officer) Chicago, IL
Steve McConnell (Senior Vice President, Public Policy and Chair, Long Term Care Campaign
Washington, DC
(In addition, we would like to get a group photo of the Public Policy staff responsible for the Forum and
fnr grassrootfi organizing on health care reform — 11 people)
�04/08/94
16:48
B202 393 2109
aLZHEIMER'S ASSN
PUBLIC POLICY STAFF C C - for group photo
D)
Steve McComell. Senior Vice President for Public Policy
Judy Riggs, Director of Federal Issues
Mike Splaine, Director of Grassroots Advocacy
Denise Benning
Brenda Ellis
Shannon GafEaey
Betsy Hyle
Kimberely Kauer
Judy Miller
Patrick Sheehan
Shane Windmeyer
OTHER ASSOCIATION NATIONAL STAFF (CHICAGO)
Kathy Kane, Senior Vice President, Communications
Kent Bamheiser. Vice President for Chapter Services
Michelle Bdczak
Nilee Frantz
Tom Kirk
Susan Mouiuour is
Mary Beth Sanders
®004/004
�\iidJLo
�Withdrawal/Redaction Marker
Clinton Library
DOCUMENT NO.
AND TYPE
002. schedule
SUBJECT/TITLE
DATE
Schedule for Hillary Rodham Clinton, Final-Revised [partial] (3
pages)
04/13/1994
RESTRICTION
P6/b(6)
COLLECTION:
Clinton Presidential Records
First Lady's Office
Melanne Verveer (Issue Binders)
OA/Box Number:
18537
FOLDER TITLE:
HRC Healthcare Book #8: Health Reform [2]
2006-0810-F
kel80
RESTRICTION CODES
Presidential Records Act - |44 U.S.C. 2204(a)]
Freedom of Information Act - |5 U.S.C. 552(b)|
PI
P2
P3
P4
b(l) National security classified information 1(b)(1) of the FOIA)
b(2) Release would disclose internal personnel rules and practices of
an agency 1(b)(2) of the FOIA]
b(3) Release would violate a Federal statute 1(b)(3) of the FOIA]
b(4) Release would disclose trade secrets or confidential or financial
information 1(b)(4) of the FOIA]
b(6) Release would constitute a clearly unwarranted invasion of
personal privacy 1(b)(6) of the FOIA]
b(7) Release would disclose information compiled for law enforcement
purposes 1(b)(7) of the FOIA]
b(8) Release would disclose information concerning the regulation of
financial institutions 1(b)(8) of the FOIA]
b(9) Release would disclose geological or geophysical information
concerning wells 1(b)(9) of the FOIA]
National Security Classified Information ((a)(1) of the PRA|
Relating to the appointment to Federal office [(a)(2) of the PRA]
Release would violate a Federal statute [(aX3) of the PRA1
Release would disclose trade secrets or confidential commercial or
financial information 1(a)(4) of the PRA)
PS Release would disclose confidential advice between the President
and his advisors, or between such advisors [a)(5) of the PRA]
P6 Release would constitute a clearly unwarranted invasion of
personal privacy 1(a)(6) of the PRA]
C. Closed in accordance with restrictions contained in donor's deed
of gift.
PRM. Personal record misfile defined in accordance with 44 U.S.C.
2201(3).
RR. Document will be reviewed upon request.
�SCHEDULE FOR HILLARY RODHAM CLINTON
DATE: WEDNESDAY, APRIL 13, 1994
FINAL-REVISED*
Lead Advance:
Paul Junior High School: Mike King
202-690-540?
202-690-6166
Scheduling Desk:
office
fax
too&
Sara Grote
202-456-2922
202-456-2317
office
fax
PREV RON
The White House
8:15 am
%
r.«
f
(b)(6).
1
KJ
?
^
t
I
j
; v.
-
\
1*1
3
"
V
9:05 am
DEPART White House South P o r t i c o
EN ROUTE Paul J u n i o r High School
[ d r i v e t i m e : 2 0 minutes]
9:25 am
ARRIVE Paul J u n i o r High School
8th & Ogelthorpe St., N
W
T r a v e l i n g w/HRC:
- K e l l y Craighead
-Lisa Caputo
-Ralph Alswang
Greeters: Laquanda Burgess, student a t h l e t e
R u s s e l l E l l i s , student a t h l e t e
Mrs. C e c i l e Middleton, P r i n c i p a l
Dan Jansen, speed skater
9:30 am10:30 am
CHAMPIONS I N LIFE ASSEMBLY [w/Dan Jansen,
K r i s t i n Talbot & K e l l e y Fox]
Auditorium
�SCHEDULE FOR HILLARY RODHAM CLINTON
WEDNESDAY, APRIL 13, 1994
PAGE 2
Paul J u n i o r High School
H o l d i n g Room: Room 17
Phone: 202-576-6190 RM 107
Fax: 202-576-6196 [ n o t i n h o l d i n g room]
OPEN PRESS
Program:
Laquanda Burgess and R u s s e l l E l l i s ,
s t u d e n t a t h l e t e s , t o d e l i v e r welcoming
remarks
Video-5 m i n .
Mrs. C e c i l e M i d d l e t o n , P r i n c i p a l t o
d e l i v e r remarks and i n t r o d u c e Deputy
S e c r e t a r y Madeline Kunin
Deputy S e c r e t a r y Madeline Kunin t o
d e l i v e r remarks and i n t r o d u c e K e l l e y
Fox, p a r a l y m p i a n a l p i n e s k i e r
K e l l e y Fox t o d e l i v e r b r i e f remarks and
i n t r o d u c e K r i s t i n T a l b o t , speed s k a t e r
K r i s t i n T a l b o t t o d e l i v e r b r i e f remarks
and i n t r o d u c e Dan Jansen, speed s k a t e r
Dan Jansen t o d e l i v e r b r i e f remarks and
i n t r o d u c e HRC
HRC t o d e l i v e r 5 minute remarks
HRC, Deputy S e c r e t a r y Madeline Kunin & 3
a t h l e t e s t o take Q & A - 10 m i n .
Mrs. C e c i l e M i d d l e t o n ,
moderate Q & A
Principal t o
Dr. F r a n k l i n Smith S u p e r i n t e n d e n t o f DC
P u b l i c Schools t o i n t r o d u c e 9 t h grade
choir
9 t h grade c h o i r t o s i n g "America t h e
Beautiful"
HRC t o meet and g r e e t w i t h c h o i r and
depart
P a r t i c i p a n t s : Approx. 400 s t u d e n t s
[See b r i e f i n g f o r more i n f o . ]
t o attend.
�SCHEDULE FOR HILLARY RODHAM CLINTON
WEDNESDAY, APRIL 13, 1994
PAGE 3
Contact:
Steve B u l l , D i r e c t o r , Gov't
R e l a t i o n s , U.S. Olympic Committee
466-3399
10:35 am
DEPART Paul J u n i o r High School
EN ROUTE White House
[ d r i v e time: 2 0 minutes]
10:55 am
ARRIVE White House South P o r t i c o
10:55 am11:00 am
PHOTO-OP W/Eleanor Whittemore Latimer
Diplomatic Reception Room
CLOSED PRESS
Contact: Kim
214-653-2431 x2239
11:00 am12:00 pm
PRIVATE MEETING W/Bob Woodward
Map Room
CLOSED PRESS
Participants:
-HRC
-Bob Woodward
-Lisa Caputo
-George Stephanopoulos
S t a f f Contact: L i s a Caputo
456-2960
12:00 pm12:15 pm
PRIVATE MEETING W/James Stewart
Map Room
CLOSED PRESS
Participants:
-HRC
-James Stewart
^ra'gg^e^llxram's '
"
'' ' " ' '
S t a f f Contact: Maggie W i l l i a m s
456-1660
�SCHEDULE FOR HILLARY RODHAM CLINTON
WEDNESDAY, APRIL 13, 1994
PAGE 4
12:15 pm12:30 pm
PRIVATE MEETING W/Dick Celeste
Map Room
CLOSED PRESS
Participants:
-HRC
-Dick C e l e s t e
-Maggie W i l l i a m s
Contact:
12:30 pm12:45 pm
Dick C e l e s t e
863-8000
PRIVATE MEETING W/Betty Munkman
Map Room
CLOSED PRESS
Contact:
Capricia Marshall
456-7064
12:45 pm1:30 pm
1:30 pm1:45 pm
1:45 pm2:00 pm
2:15 pm3:15 pm
LUNCH
PRIVATE MEETING W/Maggie W i l l i a m s and P a t t i
Solis
Residence
CLOSED PRESS
PRIVATE MEETING W/Maggie W i l l i a m s
Residence
CLOSED PRESS
OLYMPIC RECEPTION
E a s t Room
OPEN PRESS
�SCHEDULE FOR HILLARY RODHAM CLINTON
WEDNESDAY, APRIL 13, 1994
PAGE 5
Program:
O f f s t a g e announcement o f t h e P r e s i d e n t ,
VP and HRC
HRC t o d e l i v e r welcoming remarks and
i n t r o d u c e t h e VP
VP t o d e l i v e r remarks and i n t r o d u c e t h e
President
The P r e s i d e n t t o d e l i v e r
remarks
Cammy Myler t o p r e s e n t t h e P r e s i d e n t
.with Olympic j a c k e t
The P r e s i d e n t , VP and HRC proceed t o
group photos w i t h a t h l e t e s
NOTE: Weather p e r m i t t i n g ,
Grounds.
t h i s event w i l l be moved t o t h e South
P a r t i c i p a n t s : Approx. 200 people t o a t t e n d .
[See b r i e f i n g f o r more i n f o . ]
S t a f f C o n t a c t : Ann Stock
456-7136
3:15 pm3:45 pm
MEETING W/Co-Chairs o f P r e s i d e n t ' s F i t n e s s
Committee
Map Room
CLOSED PRESS
Participants:
-HRC
-Tom M c M i l l i a n , Co-Chair
-Florence Joyner, Co-Chair
-Sandy P e r l m u t t e r , E x e c u t i v e D i r e c t o r
HRC Rhflff ho ar.r.Rnri:
-Melanne Verveer
S t a f f C o n t a c t : Melanne Verveer
456-6266
3:45 pm4:20 pm
4:25 pm
PHONE/OFFICE TIME
Residence
PROCEED TO OEOB
�SCHEDULE FOR HILLARY RODHAM CLINTON
WEDNESDAY, APRIL 13, 1994
PAGE 6
4:30 pm4:35 pm
VIDEO FOR Forum on Children's Issues"Achieving t h e Dream: H e a l t h Care-Healthy
Kids"
459 OEOB
Contact:
Stephen Rivers
310-475-0373
S t a f f Contact: Dave Anderson
456-7150
6:30 pm
7:30 pm
DEPART White House South P o r t i c o
EN ROUTE Washington H i l t o n
7:40 pm
ARRIVE Washington H i l t o n
7:45 pm8:20 pm
OLYMPIC DINNER
Washington Hilton Hotel
A t t i r e : Black T i e
OPEN PRESS
Program:
A t h l e t e s are announced by s p o r t and
proceed t o stage
The President, HRC and VP are announced
o f f s t a g e t o R u f f l e s and F l o u r i s h e s and
H a i l t o the Chief. The President, HRC
and VP proceed on stage.
�SCHEDULE FOR HILLARY RODHAM CLINTON
WEDNESDAY, APRIL 13, 1994
PAGE 7
The N a t i o n a l Anthem i s p l a y e d
by t h e Pledge o f A l l e g i a n c e
followed
Dr. Walker, Pres. o f USOC t o d e l i v e r
welcoming remarks and i n t r o d u c e HRC
HRC t o d e l i v e r b r i e f remarks and
i n t r o d u c e VP
VP d e l i v e r s remarks and i n t r o d u c e s t h e
President
The P r e s i d e n t d e l i v e r remarks
The P r e s i d e n t , VP and HRC d e p a r t
P a r t i c i p a n t s : Approx. 1700 people t o a t t e n d .
[See b r i e f i n g f o r more i n f o . ]
Contact:
8:20 pm
Steve B u l l , D i r e c t o r , Gov't
R e l a t i o n s , U.S. Olympic Committee
466-3399
DEPART Washington H i l t o n
EN ROUTE White House
8:30 pm
ARRIVE White House South P o r t i c o
RON
The White House
FORECAST FOR WASHINGTON, DC:
-Cloudy w i t h s c a t t e r e d r a i n showers and thunderstorms.
56. H i g h 67 t o 72.
Low 51 t o
��Withdrawal/Redaction Marker
Clinton Library
DOCUMENT NO.
AND TYPE
003. schedule
SUBJECT/TITLE
DATE
Schedule for Hillary Rodham Clinton, Final [partial] (4 pages)
04/14/1994
RESTRICTION
P6/b(6), b(7)(E)
COLLECTION:
Clinton Presidential Records
First Lady's Office
Melanne Verveer (Issue Binders)
OA/'Box Number: 18537
FOLDER TITLE:
HRC Healthcare Book #8: Health Reform [2]
2006-0810-F
kel80
RESTRICTION CODES
Presidential Records Act - [44 U.S.C. 2204(a)]
Freedom of Information Act - |5 U.S.C. 552(b)]
PI
P2
P3
P4
b(l) National security classified information 1(b)(1) of the FOIA|
b(2) Release would disclose internal personnel rules and practices of
an agency [(b)(2) of the FOIA]
b(3) Release would violate a Federal statute 1(b)(3) of the FOIA|
b(4) Release would disclose trade secrets or confidential or financial
information 1(b)(4) of the FOIA]
b(6) Release would constitute a clearly unwarranted invasion of
personal privacy 1(b)(6) of the FOIA]
b(7) Release would disclose information compiled for law enforcement
purposes 1(b)(7) of the FOIA]
b(8) Release would disclose information concerning the regulation of
financial institutions 1(b)(8) of the FOIA]
b(9) Release would disclose geological or geophysical information
concerning wells [(bX9) of the FOI A]
National Security Classified Information 1(a)(1) of the PRA]
Relating to the appointment to Federal office 1(a)(2) of the PRA]
Release would violate a Federal statute |(aX3) of the PRA]
Release would disclose trade secrets or confidential commercial or
financial information 1(a)(4) of the PRA]
P5 Release would disclose confidential advice between the President
and his advisors, or between such advisors |a)(5) of the PRA|
P6 Release would constitute a clearly unwarranted invasion of
personal privacy [(a)(6) of the PRA|
C. Closed in accordance with restrictions contained in donor's deed
of gift.
PRM. Personal record misfile defined in accordance with 44 U.S.C.
2201(3).
RR. Document will be reviewed upon request.
�SCHEDULE FOR HILLARY RODHAM CLINTON
DATE: WEDNESDAY, APRIL 14, 1994
FINAL*
WASHINGTON, DC; NEW YORK, NY; WASHINGTON, DC
Travelling Staff:
Craighead
Caputo
Verveer
Ralph Alswang
,'(b)(6) <
-
Congressional Delegation:
Cong. Charles Rangel
[D-NY]
Sara Ehrman
Guest:
Lead Advance
New York, NY
Kara McGuire
Rm#28-T
Waldork A s t o r i a Hotel
3 01 Park Avenue
Phone:
212/355-3000
Fax:
212/872-7272
In Room Fax: 716/726-2502
-'-:-'f.- r '-'
••'Qr-.
J u l i e Hopper
Scheduling Desk:
202 -456-7561
202 -456-2317
office
fax
(b)(6)
*
i
%
The White House
PREV RON
7:15 am
•j
>
(b)(6)
f
-
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�SCHEDULE FOR HILLARY RODHAM CLINTON
WEDNESDAY, APRIL 14, 1994
PAGE 2
8:15 am
DEPART The South P o r t i c o
EN ROUTE Andrews A i r Force Base
[Drive Time: 25 minutes]
T r a v e l l i n g w/HRC:
K e l l y Craighead
L i s a Caputo
Melanne Verveer
Ralph Alswang
Sara Ehrman
8:40 am
ARRIVE Andrews A i r Force Base
Phone: 301/981-2100
Fax: 301/981-4527 OR 202/395-1233
8:45 am [EDT]
WHEELS UP Washington, DC
FLIGHT TIME: 50 minutes
MANIFEST: HRC, Craighead, Caputo, Verveer, Alswang, Ehrman,
Cong. Charles Rangel,\m^"--'iW&'
FOOD: Breakfast
9:35 am [EDT]
WHEELS DOWN La Guardia
FBO: Signature F l i g h t Support
Marine A i r Terminal
Holding Room: F i r s t Floor Conference Room
Phone:
718/476-5200
Fax:
718/476-5239
CLOSED PRESS/PUBLIC ARRIBAL
Note: Kara McGuire w i l l meet HRC at the airport
NO GREETERS
9:40 am
DEPART The A i r p o r t
EN ROUTE North General H o s p i t a l .
[Drive Time: Approx. 15 minutes]
MOTORCADE MANIFEST:
LIMO: HRC
STAFF VAN:
Craighead, Caputo, Alswang
VIP VAN:
Cong. Charles Rangel, Verveer, Ehrman
�SCHEDULE FOR HILLARY RODHAM CLINTON
WEDNESDAY, APRIL 14, 1994
PAGE 3
9:55 am [EDT]
WHEELS DOWN La Guardia
FBO: S i g n a t u r e F l i g h t Support
Marine A i r T e r m i n a l
Holding Room: F i r s t Floor Conference Room
Phone:
718/476-5200
Fax:
718/476-5239
CLOSED PRESS/PUBLIC ARRIVAL
NOTE: Kara McGuire w i l l meet HRC a t the a i r p o r t .
NO GREETERS
9:40 am
DEPART The A i r p o r t
EN ROUTE N o r t h General H o s p i t a l
[ D r i v e Time: Approx. 15 m i n u t e s ]
MOTORCADE MANIFEST:
LIMO: HRC
STAFF VAN: Craighead, Caputo, Alswang
VIP VAN:
Cong. Charles Rangel, Verveer, Ehrman
9:55 am
ARRIVE N o r t h General H o s p i t a l
1879 Madison/122nd S t r e e t s
[Main Entrance]
OPEN PRESS ARRIVAL
G r e e t e r s : Eugene "Gene" McCabe; Pres. Of N o r t h General H o s p i t a l
L i v i n g s t o n F r a n c i s ; Chm. Of t h e Board
Assemblyman Angelo Del Toro [D]
Borough P r e s i d e n t Ruth Messinger [D]
10:00 am
V I S I T t o N o r t h General H o s p i t a l
HRC's H o l d i n g Room: 7200 Conference Room
Phone: 212/423-4785
Fax: 212/423-4204
S t a f f H o l d i n g Room: 7 t h F l o o r , Conference Rm.
A t t i r e : Business
10:00 am
PROCEED TO 7TH FLOOR
�SCHEDULE FOR HILLARY RODHAM CLINTON
WEDNESDAY, APRIL 14, 1994
PAGE. 4
ELEVATOR MANIFEST:
HRC, Craighead, McGuire, Cong. Rangel, Verveer, Caputo, Alswang,
Rogers
10:05 am10:20 am
TOUR o f t h e P e d i a t r i c U n i t
7th Floor
POOL PRESS ONLY
PARTICIPANTS ON TOUR:
- HRC
- Cong. Charles Rangel
- Eugene McCabe
- Dr. Anthony Francis,- S t a f f P e d i a t r i c i a n
- Dr. I d a i s e Peguaro
- Dr. Kata Rao; Chief o f P e d i a t r i c s
FORMAT:
- HRC w i l l t o u r p e d i a t r i c u n i t ; stop i n
p l a y r o o m / a t r i u m and v i s i t w i t h c h i l d r e n
and t h e i r mothers.
TIGHT POOL PRESS ONLY
- Proceed t o nurses s t a t i o n f o r s p e c i a l i z e d
Computer d e m o n s t r a t i o n ( u p - t o - d a t e b i l l i n g
And p r o c e s s i n g f o r p a t i e n t s , e t c . )
- Demonstration by Pat N o r m a n ; F a c i l i t i e s Adm.
TIGHT POOL PRESS ONLY
- Proceed with tour of p e d i a t r i c u n i t
CLOSED PRESS
- Proceed t o 5 t h F l o o r f o r A d m i n i s t r a t o r s
Meeting
10:20 am
10:25 am11:00 am
PROCEED TO STAIRWAY
PRIVATE MEETING w/ H o s p i t a l A d m i n i s t r a t o r s
Conference Room - 5th Floor
CLOSED PRESS
�SCHEDULE FOR HILLARY RODHAM CLINTON
WEDNESDAY, APRIL 14, 1994
PAGE 5
PARTICIPANTS: Approx. 20 expected t o a t t e n d
[See b r i e f i n g book f o r f u r t h e r i n f o ]
Event Contact: Eugene McCabe 212/423-3900
Rangel Contact: V i v i a n Jones 212/663-3900
11:00 am11:10
OFFICIAL PHOTO/MEET & GREET
Adjoining Conference Room - 5th Floor
CLOSED PRESS
PARTICIPANTS: 2 0 expected to attend
FORMAT:
- I n f o r m a l meet & g r e e t / o f f i c i a l photos
Rangel Contact: Emil Jones
11:15
225-02 93
DEPART N o r t h General H o s p i t a l
EN ROUTE Waldorf A s t o r i a H o t e l
[ D r i v e Time: 25 minutes]
MOTORCADE MANIFEST:
LIMO: HRC
STAFF VAN: Craighead, Caputo, Alswang
VIP VAN:
Cong. Rangel [T], Ehrman, Verveer
11:40
am
11:45
12:15
ampm
ARRIVE The Waldorf A s t o r i a H o t e l
3 01 Park Ave.
The W e l l
OFFICIAL PHOTO/MEET & GREET W/LOCAL DIGNITARIES
Hoover S u i t e -- 4 t h F l o o r
HRC's Holding Room: Hoover Anteroom
CLOSED PRESS
PARTICPANTS: Approx. 40-50 expected t o a t t e n d
[See b r i e f i n g book f o r f u r t h e r i n f o ]
FORMAT:
- Receiving l i n e / o f f i c i a l
photos
�SCHEDULE FOR HILLARY RODHAM CLINTON
WEDNESDAY, APRIL 14, 1994
PAGE 6
S t a f f Contact: Joe Velasquez
12:30 pm1:00 pm
1:00 pm2:30 pm
456-6257
LUNCH
S u i t e : 42R
S t a f f Hold: 41M
PRIVATE MEETINGS
Suite: 42R
CLOSED PRESS
PARTICIPANTS: To Be Determined
FORMAT:
- 2 0 minutes f o r each i n d i v i d u a l meeting
Event Contact: P a t t i S o l i s
2:30 pm2:35 pm
DROP BY w/Ambassador Madeline A l b r i g h t [TENTATIVE]
Suite
Contact: Susanne M c P a r t l i n
2:45 pm6:15 pm
D W TIME
ON
S u i t e : 42R a t t h e Waldorf A s t o r i a H o t e l
6:15 pm7:15 pm
v .
> *
J
7:20 pm
V
.
202/415-4402
»
, > -. < (bl(6) ' • * C. /
- . '..(b)(6)-..
. •
t
DEPART The Waldorf A s t o r i a H o t e l
EN ROUTE New York P u b l i c L i b r a r y
[Drive Time: 10 minutes]
�SCHEDULE FOR HILLARY RODHAM CLINTON
WEDNESDAY, APRIL 14, 1994
PAGE 7
MOTORCADE MANIFEST:
LIMO: HRC
STAFF VAN: Craighead, Caputo, Alswang, Verveer
GUEST VAN: Asnes, Thomases, Ehrman
7:30
pm
ARRIVE New York P u b l i c L i b r a r y
455 5 t h Ave. [ 4 0 t h S t r e e t Entrance]
7:35
pm
PROCEED t o S t a i r w a y
Greeters:
- Dr. Paul LeClerc
- J u d i t h Ginsberg, w i f e of Dr. Paul LeClerc
7:40
pm
PROCEED t o T r u s t e e s Room
7:40
7:55
pmpm
MEET & GREET w/VIP's
Trustees Room
CLOSED PRESS
PARTICPANTS: Approx. 2 0 expected to attend
FORMAT:
- I n f o r m a l meet & g r e e t / o f f i c i a l photo
8:00 pm10:30 pm
E L I E WIESEL FOUNDATION'S HUMANITARIAN AWARD
C e l e s t e B a r t o s Room
HRC's H o l d i n g Room: P r e s i d e n t ' s O f f i c e
Phone: 212/930-0735
Fax: 212/869-3567
S t a f f Holding Room: L i b r a r y C a f e t e r i a
S t a f f Phone: 212/930-0779
A t t i r e : BLACK T I E
POOL PRESS DURING REMARKS ONLY
PARTICIPANTS: Approx. 500 expected t o a t t e n d
[See b r i e f i n g book f o r f u r t h e r i n f o ]
Seated beside HRC:
- E l i e Wiesel
- Edgar Bronfman
�SCHEDULE FOR HILLARY RODHAM CLINTON
WEDNESDAY, APRIL 14, 1994
PAGE 8
FORMAT:
- C h a r l i e Rose; Master o f Ceremonies
B r i e f Remarks by
-
the Following: Approx. 25 minutes t o t a l
Dr. Paul LeClerc; Pres. Of NY P u b l i c L i b r a r y
Edgar Bronfman, Chairman
Prime M i n i s t e r Tansa C i l l e r
Barbara S t r e i s a n d
Dr. Emanuel Rackman g i v e i n v o c a t i o n
- Dinner i s served
- Bernard Kalb, P r e s e n t a t i o n o f the 1994 P r i z e s i n
Ethics
- Carly Simon sings
- E l i e Wiesel, P r e s e n t a t i o n of the Humanitarian
Award t o HRC
- Edgar Bronfman e s c o r t s HRC t o podium
- HRC accepts award and d e l i v e r s remarks
- HRC departs stage l e f t
Event Contact: Marion Wiesel
10:30 pm
212/221-1100
DEPART New York P u b l i c L i b r a r y
EN ROUTE The A i r p o r t
[Drive Time: 20 minutes]
MOTORCADE MANIFEST
LIMO: HRC
STAFF VAN: Craighead, Caputo, Alswang, Verveer, Ehrman
10:50 pm
ARRIVE The A i r p o r t
11:00 pm [EDT] WHEELS UP New York, NY
FLIGHT TIME: 55 minutes
MANIFEST: HRC, Craighead, Caputo, Verveer, Alswang, Ehrman,
>'"' ?.
'•. .-
''-'i
FOOD: Snack
11:55 pm [EDT] WHEELS DOWN Washington, DC
�SCHEDULE FOR HILLARY RODHAM CLINTON
WEDNESDAY, APRIL 14, 1994
PAGE 9
12:00 am
DEPART Andrews A i r Force Base
EN ROUTE The White House
12:25 am
ARRIVE The White House South P o r t i c o
RON
The White House
�
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Health Care Reform
Identifier
An unambiguous reference to the resource within a given context
2006-0810-F
Description
An account of the resource
<p>This collection consists of records related to Hillary Rodham Clinton's Health Care Reform Files, 1993-1996. First Lady Hillary Rodham Clinton served as the Chair of the President's Task Force on National Health Care Reform. The files contain reports, memoranda, correspondence, schedules, and news clippings. These materials discuss topics such as the proposed health care plan, the need for health care reform, benefits packages, Medicare, Medicaid, events in support of the Administration's plan, and other health care reform proposals. Furthermore, this material includes draft reports from the White House Health Care Interdepartmental Working Group, formed to advise the Health Care Task Force on the reform plan.</p>
<p>This collection is divided into two seperate segments. Click here for records from:<br /><a href="http://clinton.presidentiallibraries.us/items/browse?advanced%5B0%5D%5Belement_id%5D=43&advanced%5B0%5D%5Btype%5D=is+exactly&advanced%5B0%5D%5Bterms%5D=2006-0810-F+Segment+1"><strong>Segment One</strong></a> <br /><a href="http://clinton.presidentiallibraries.us/items/browse?advanced%5B0%5D%5Belement_id%5D=43&advanced%5B0%5D%5Btype%5D=is+exactly&advanced%5B0%5D%5Bterms%5D=2006-0810-F+Segment+2"><strong>Segment Two</strong></a></p>
Provenance
A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource.
Clinton Presidential Records
Publisher
An entity responsible for making the resource available
William J. Clinton Presidential Library & Museum
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Original Format
The type of object, such as painting, sculpture, paper, photo, and additional data
Paper
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
HRC Health Care Book 8: Health Reform [2]
Creator
An entity primarily responsible for making the resource
First Lady's Office
Melanne Verveer
Identifier
An unambiguous reference to the resource within a given context
2006-0810-F Segment 1
Is Part Of
A related resource in which the described resource is physically or logically included.
Box 40
<a href="http://clinton.presidentiallibraries.us/items/show/36144" target="_blank">Collection Finding Aid</a>
<a href="https://catalog.archives.gov/id/2068127" target="_blank">National Archives Catalog Description</a>
Provenance
A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource.
Clinton Presidential Records: White House Staff and Office Files
Publisher
An entity responsible for making the resource available
William J. Clinton Presidential Library & Museum
Format
The file format, physical medium, or dimensions of the resource
Adobe Acrobat Document
Medium
The material or physical carrier of the resource.
Preservation-Reproduction-Reference
Date Created
Date of creation of the resource.
5/5/2015
Source
A related resource from which the described resource is derived
42-t-2068127-20060810F-Seg1-040-010-2015
2068127