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CLINTON LIBRARY PHOTOCOPY
�PUI
MAY
I 1995
'1424C}:IESTNUT STREET
PHILADELPHIA, FA 19102
215-981-3700
Fax No. (215)
~81-0435
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O'l1AfO.2 _________________________
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�1424 CHESTNUT STREET
PHILADeLPHIA. PI>. 11)102
215·881·3100
FA,X ,,!i.\lR,.()4:\4
April 25, 1995
Jim Slar::tery
Chair, Childhood Di3ability Commission
Wiley, Rein & F·ieldina
1776 "K" St.n::et NW
W03hingtOn, DC 20006
I
RE: Commission Draft Policy
RecomrMmdationSl i Three ProblQms·
Dt;:Cl.!"
J..i.m:
Alt.houah many of the Commission draft recormnendations appear
to be sal utal."Y I . the one, that i5 ,the most far-reaching' in its
deleterious impact on disabled children now eligible for 55I is the
one that: would overturn' the
z~bley
supreme Court: decision and
eliminate the cu:t;rentindividualiz:ed functional asse55ment 5everity
test in favor of a "functionally &quals· sGverity test.,
The propo!al may have the, fCLcile appeal o'f addressing
"functioning", but it is a radical step backward toward the pre
zebley days of broad denials of severely disabled children for whom
there i~ a conoenouo that' they chould bo determined dicablcd.
A. "!unctional' equals" to the Listings test is deficient
because whatever functional gloss is given to the process, the teet
is pegged to the ext.reme severity 'criteria of the 'Listinas which
often manifest in· children ~ conditions where· there is a vil-tual
total 'failure of. treatment; repreSlGntativQ Listings thus .often
I
reQuire "recent and-recurrent" hospit.alizations as the only way to
CIuaIi fy.
This highSev'eri ty, standard was never intended by Congress as
the u.s. Supreme Court ha3 held, to be a fair and legal severity
standard for children. ~he Court repeatedly found that:
I
get
The Secretary explicitlYha5
the medical critGria defining
the listed impairments at a higher
level 'of severity t'hanthe statutory
standard, , .,
When the Scc:reto.ry· developed
the child-di~~hilitylistinas. he
set cheil: medical cd teria att;.he
same level of severity as that of
.the adult.s list-ings.
See 4:l Fed.
Reg:
.
.
14705 (1977), •
�Zeblev, 493 U.S. 531, 532-33, 110 S.Ct. g9:?'~ .~.!'ly :-:r..iljrer:'s t.est
p!=:g;Jp.d at or ec:rual to the Li.st.ings It;vt;b c:' ·seve:.·~ty is
~~~d~meh:al:~ unfair and unjust.
T:"le ,. functic:!al equals" prop()~ol does rni::l.'o:: the =ecent.ly
pe:.sseo!!ouse Republi:=an provieion and may inhibit more c:::.nstruc:tive
ar:c. s~~po::::ive proposal!::: pending now in the Senate. '::or.::::-a!y;:c
;::r.; Gr~oneous as~umpL.i.un of some, the IIc\.:.:se . I<.e~~bH::a::. Wc::Ea.rc
!Jill, :!.R.4, does provide for a pre-Zeb:i.t::'Y . "mp.et" Anr: "AC}t1r=.ls"
Lis:inGl"l t.Ast (although not. qenerallv with a provision fOI' ::.:o::.;ll
benefit..::.;).
The exact languQge (at pp. 255--260 of the bill)
provides in Sec, 602/a) tor a disabil;t.y :-.AS: w:'t!l:
Han impairment that meets th~' .
Listings .' . . or t:hat :i !;p.Quivalem;
in sever i tv to S u~h ll11f,.>d.i !:ment:. ...... .
{eI:'lphasis o.ddedl
This "equivalency" in this House bill Ceili ,L),tuvlde fo:: a Ufl;nctional
2;:r,.;.iv!i~er:cy" policy by the agency.
Thus we can a::curate!y describe
-.:!1e c:or.ll!\issi:m draft .r~.comrnennnt.iDn asthesams c.isabLi..it:.y test as
~~c
r.cuse Republican bill.
'!'he mOSt rev'!!a.lino bM.t.OlT\ lIne impact:. tor ch!.ldren, com!.r.~
3 " !t:.n;:::onalequals" tu LlsLings policy joining a "meets I'
from
~he
:"is tlng3 policy,. 1::; the: :::ecent. concl·.lsio:-; 0: the Congressional
Bt:.dget t;;;=~':.::e that H.~. ~'s "meets or ea:ua':'s" test, elirr.ir.ating t:.he
£;eb:ey If? \:.esr., would tt:tmlnate .abo·.;.t l?i, OCOcfthe ,2:;:5,000 /"
::h::':'o=e:: -now or. SS! ::'hough the IFA test. ]..lthough abou:: 40. OQO f'('i
5C. C0!J. c':·'; 1 r:rAf. ge~tlng 551 via the IFP.~es'::. c~uld :::-equ.a:':'fY,t.;lt;;
oreal: rr.ajor:li...v of IFA ch::'ldr~n would be terr.::'no.:ed
::k!'.ied ::..~ t.he
f·,;c .... re.
.We . can expect: a similer draccr.ia::;. impart frr.m WillT'
"f:.m:-.t.'('in~i equals" propoSal.
I have confirmed· with B~.t.:Y Elgen at
5S.~
Lhc:1L
OU1" nUmber:; .estimate· of
cho:oc terminated under the
"fu:lc,:':'o!".al equals" proposal is' reasonabi.E.
or
'!';'J.ere is simply no l:e:3t:'mony or evidence before che Comrr.ission
broad d~nial of S~T hAnAti~s to children
:ndeed the corrunission Ilt1:::i ht;c:uu Lest.imony from
t11!Hu~1. ollyourw:i..t:nes:!es about. how se·.jercly dicablcdchildren are
now receiving SSI wieh almos;t no reliable ~vid~ncl? of ~hl1~A of t..h(; .
IF7i. t.es: or its allowinQ children with ;:ninima.i Y;U::,.;lt;lll:; LQ l.·eceive·
;0 :ustify· such a
r.lIrrently eligible.
S5:.
':'he draft recomrnenda::icn, if it. hd.S a po:'iticl!21 as:sessment
racner the-nan empiric.:Ii policy baci.::, fa~le: 1:0 take into
acceun: upcoming initie~ivA~ • . esp~cially that of Sen. Kent
:"'or.rad's, intention co im::tuuu.~e d 55I cli.;'ldl.-e:'1's bill that make:;!
::no.ny re:orrr.s similar to many under Commission cohsidGrat.ior:, ~.
si;;rr.':"~:'cant;ly ke~ping the current TFA f.est with some' refinements.
Y~flcsis
I
rt:t:5 a po.l!.tical
asseS~l[lcJlL
Ll1dL H.R. 4 is t:heonlycong:-e:33icnal
2
�vehicle for chanQe is not an accurate one. we cannot believe that
the Commission would want to undermine more delibe~utive, wcll
grounded reform efforts in the Senate.
We currently have 0.
functional, cquale; teet t.hat. co-exist.s,
with t.he' IFA test, but i t qualities relatively few children
accordinq to SSA. 'TYpically <.:hildren with multiple problems each
,of which is evaluated ae "moderate" today would not qualify under
t hlO' pY("lposa L
Thus a Ch,ild wi th cerebral DarSY, wi th an' J.. U. in
ti1(;! Ivw 70's (a hmoderate" in ,t.he cognition domain), wich problem!;}
in walking but as yet without prestribed leg braces (a "moderate"
in the motor domain); and with speech difficulties but not
incomprehensible (0. "moderate· in communication), would not qualify
with a functionally "equals"L.istings t.est.because the List.ings
require multiple "marked" level of !;:!l;lvE:u:ity' fuw,;liuW:l.l .iu1!Jd.ir.1t1tmL::>.
U
II
Similarly, an epill?pt.ir: r:hild. with mental retardation whose
",mode.!d.Le" .incogll.ition) and whose
8,ei :i:ures are frequent over thc year but not weekly (i. e, not at
the epj,lBp~y r,i~tinO'l=: ~p.verity level), is again a child wno would
be denied, but tudQy wvuld l.ikely to be·allowed,
1.0. is in the low 70's. (i.l;l.
I
WP. 1'1l!;("l have great misgi vinO's to recommendar.ion f5 oria family
cap which seems to Ilut, unly address the question of multiple
bcncfitz for the eame·household, which we first brought up, but
nppBaY~ t.("l g("l much t\lrther by attempting to measure benefics solely
QS ndQL(;!d Lu 0 b)o.!L.icular child's special disa'bility related
ncedz., Such a proposal is unworkable and ignores SSI I S long
~ti1nrling purpose to address both basic needs and the child's
sPeclal needs. It i$ unworkQble because calibrating benefit~ for
tens of thousands of families, would immerse the. bureaucracy in
micro-management of farnilybudgetS and a never-ending inquiry into
what constitute~ appropriate ~pecial need:;,.
We also reiterate our ana the CCD opposition to an arbitrary
fluc Cilp on benefits ilnd urga 0. more€quituble declining benefit
st:',hed\lle for mi.!1tlple child h0l1!1l8holds.
Finally, we hav'c ctrong rcc,ervationc abouc :lwitching the 55I
r:hilr1ren 'g ,prcgrarn tc HHS. 'The lat'.I".Ar hA!; nil di rect experience or
SLl.·uCLUl.·e In dll.eCL o.dm.in.isu:d.L.ion vi Cl mCl~:S gI":l.Tlts benefit
programl ite welfare programs are fitatc admini8tered.
The
proximi t:.y in HHS f:('') (''It.hAr hAl'll t:h ;;nt'l 80el a 1 servicll? programs ha,s
W;:V\i;L In Lh\; Pd.:;;L o:;;:;;u:t'l;ld <:lIlY liuk-up::; with these services i a SSA
adminietered SSI program can link-up with other programs if there
is A legi!=.li'lr,i.vA fl("llir:y c'iir8ction to do so.
'Placing 'the S5I
children's program in HHS will risk it, aettinq lost in a larger
bureaucracy and putting it at greater risk of being "block granted~
to 'the states whic::h, w!")u] (j he a m~jor. step backward in insuring
national UJ1,l LO!flli Ly , <:lJ.H.1 mini1l1uIll standards' - the whole point: of
the SSI,la~ in 1992 that Precident Nixon ~dopted.
3
�CO ...... UNITY
LliLc.... 1..
Sr;;'QVICIltJ:.
In conclusion we tz:·u::IL1.h"'L 1.he Commiss.i.on will -lwt rush inLo
recommended policies without. ccmsideration of 'the above
~(,:lT'l~idp-rati0ns.
Too much is' at stake'· for too many deserving
t;.:blldrell.
Thank you for the opportunity to consider these
a
concerns~
•
N'~1'H~N
M.
S'T'P.TN
GeIlenll CoumH::l
JMS/dof
cc: CommioGion McmbarG
Elaine· Fultz. Statt Director
4
..
Ir-Ic.
�~NffY
. 1424 ChESTNUT
ST~EfT
Pl1ilADElPHIA, PA 19102
.SErwicES"NC.
Jim s:att:e:ry
Ch,::d. :::r.Cl:::, ~:hi Idhc<:,d !Jisal:: :.li I.y CClHunl:::;;:; i<.:n
Wiley, R~ir. &·field':'::.g
17 -;' 6 ~ K· S t teer:; ~W'
1't'i~3 ~li :"'~9t; on,
DC
2':'0·: G
);(t:: Comnisslon nr,'ltr. ;,"'ll i r::y
~!:commer.cla t i(;ns; f"),.iL I.!I
Ct;;(l!.
P! ,.)1; 1 ~IH
Jim:
cmd CorranlsElon Jr.embcn::· ~f Acril ;:5
,na j or pl';)b:-.;m wi r:h tt:e dra ~ t ." pn~ j ! 01 in,; ry II
:t'-?CC~I~·,p.'\f;nd.:..t.ionc: itl'3' 3tc.tement of purp6~",,:s; l.imiting th~ l:-l!vg:..:;:n
t ) i'ne:?r.:ng r.h~ ·~:<,:,Y·.:;cl)sts" of caring' f;:;.r tha disabled chil'i
·,<io'.1:d br.i.n\,j· duuul d J~,j~£al restruccurinQ ot t!:e SSI r.hi ;dn:;!"",a.
p~·ogt"a!T\.
:>hc p::opc:ial igr,ores the I'edl wcd,d of pI)ven.YChaL L1l~:::;e
'fa:-r.i1:'-::s 1 i'/p. ~ n ;;~',d rendi;".fJpropr;sals in C,:mgrGss thai:: ·....ould
Ollr p(I!'.1..i.er lecr.e.r te' vet:
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l~ok co fer !u:t'viva~.
t\j~"~p'
F'.:'L ;2 0 Yl:d.!::S ::r.e 55I pr'.:>qrarn has rIot only S'.)Li.'Jttt co rr."'~;
",:;:<tra ccscs ,
but ...' ll:;Qr..hc b.::l:3:'c neces tie:s of life of ci.iba;·,i:~";
cr.: l.dren, Tr.deF:<"!. Sr.;!":·">t: (H' K~nt: C"nrad 's furthccming SST r",f..:>rm
bill, ,t::-:ac 1~e,6n!1\.:'J[1.~~:J u:,K1ay ~eCore the 5:::10:':; ci:1-=r1ceC'::.rr.rni".·.€i:,.
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S:-;,';.;::l.:J1ly· j·;':F.:5sed:- H-eiS· ::.hr:: C,:,0"~ni55~':;:-' lest sight 0: Wt-l6.t t;~i.[",g ~
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Hc.us~ Ft,ss.ad ~~:.··i';'';.&l.
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o~hcr po~r ~hildrenl ~ho
has been on. AfDC
:'Cl' 5:;'cars (thf!! $·-;, .. call<3d d1'op c.ead t ir:lC limit.); t.o the -::IiH,hlljid
c;,i ld:'en cf young :E:Gn--ag2 :nC)r::l1e;:s ;to the \.iisabled chi ldrer. 1,,11:051::
9.;.t.:e~:1i.ty ''';05 not;; .;~tabl i::;hcd .;it tht;· t.imt:: 0: applic-J.':..le-n, .01:C:
In
.",::dit;.lN'.. ,~,FDC ~I.lr.d':'ng ··";-<)I.~ld br:> rs?duced by :h€ ' 1-\(:11S,":' • .5;>:-1 (lb; (')('k
gr.3.nr:::ng" '.IIil:. all':'I", £,tdteS t::;1ecrCdS': or. el i;r:inace (he scace
~Qtch now require~, further ereding l~e only C~Gh bcn~fi:
,:holt YOU"- pr'('['t:>S<i 1 ,..;n:li:-1 fe.r'Cf> SST f..:;:ni 1; 0:::. n::tn
pr~gr~m
Fin,)lly, pl<::.)GC rcm<;:rrbcr. t.hat .I~nc m.ain n::-'lfj:;:.;n why SSt :u:::
Q:;s.:;:nt:'",':' to Tnt] in,) not onlv "Gx(ra r:OstS·1 but b';S1(, n""""r:'!;; cf
f,:.H!lilies Ls tho:: lWSI: ~)ft€rl a •·••;()rkin9 ~Ct!(;I!I~ IHU<;i'L [ur\.:iv 'a!! ·~aL:H.d
i~comc to care for t~c dioablcd child.
Mr, h~drcc~, the father w~c
~C~e~Ess tut fOT SST. h6S ~ full ~;mA jnh n~ rArl~a f~~
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Carol Rasco - Issues Series
Creator
An entity primarily responsible for making the resource
Domestic Policy Council
Carol Rasco
Issues Series
Is Part Of
A related resource in which the described resource is physically or logically included.
<a href="http://clinton.presidentiallibraries.us/items/show/36305" target="_blank">Collection Finding Aid</a>
<a href="https://catalog.archives.gov/id/7763322" target="_blank">National Archives Catalog Description</a>
Identifier
An unambiguous reference to the resource within a given context
2010-0198-S Segment 2
Description
An account of the resource
Carol Rasco's Issues Series collection consists of records relating to affirmative action, health care and reform, Medicare/Medicaid, immigration, disability, children, families and seniors, education, welfare reform, Middle Class Bill of Rights, and state and local economic issues. This collection consists of memos, letters, reports, schedules, itineraries, talking points, copies of legislation, and organizational material such as flyers and pamphlets.
Provenance
A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource.
Clinton Presidential Records: White House Staff and Office Files
Publisher
An entity responsible for making the resource available
Clinton Presidential Library & Museum
Extent
The size or duration of the resource.
92 folders in 7 boxes
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Original Format
The type of object, such as painting, sculpture, paper, photo, and additional data
Paper
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
SSI: Kids
Creator
An entity primarily responsible for making the resource
Domestic Policy Council
Carol Rasco
Issues Series
Identifier
An unambiguous reference to the resource within a given context
2010-0198-S Segment 2
Is Part Of
A related resource in which the described resource is physically or logically included.
Box 126
<a href="http://clintonlibrary.gov/assets/Documents/Finding-Aids/2010/2010-0198-S-IssuePapers.pdf" target="_blank">Collection Finding Aid</a>
<a href="https://catalog.archives.gov/id/7763322" target="_blank">National Archives Catalog Description</a>
Provenance
A statement of any changes in ownership and custody of the resource since its creation that are significant for its authenticity, integrity, and interpretation. The statement may include a description of any changes successive custodians made to the resource.
Clinton Presidential Records: White House Staff and Office Files
Format
The file format, physical medium, or dimensions of the resource
Adobe Acrobat Document
Publisher
An entity responsible for making the resource available
Clinton Presidential Library & Museum
Medium
The material or physical carrier of the resource.
Reproduction-Reference
Date Created
Date of creation of the resource.
12/4/2013
Source
A related resource from which the described resource is derived
2010-0198-Sb-ssi-kids